Hi. i've been doing some research and found this site and after reading your posts, i found i'm not alone in this! i lost my son at 29 weeks from a clotted placenta . i found i have two clotting disorders. one is compound hetero for mthfr and hetero for PAI-inhibitor. i've been told i will be on lovenox 40 every day my next pregnancy. they also told me to take more folic and b vitamins. what dosages are you girls taking regarding the b vitamins? anyone on lovenox already for these disorders?? sorry for everyone's losses. praying for a great 2007 for all of us.
michele ↑
Hello All! I did find B12 is ok, no limit to worry, but I did find a limit on B6 100MG? I don't know what the heck to do! I was thinking I'll continue on the prenatal, 4 mg folic acid, add in 1 baby apirin and extra B12. I honestly think you all know more than these doctors. They are all so concerned of a law suit they do not want to hand out real advise any more. Anyone in the CT - Hartford area? I'd love some advice on Drs. you've had good luck with. *Bless you all * It's so inspiring to read your stories and pull from your courage and strength...I know none of you personally, but this site is where I turn when I'm struggling on what to do next.. It seems everyone in my life has moved on past this and it still is consuming all my thoughts.... Happy Saturday night!! ↑
Thanks to everyone for the congrats! I am definately feeling pregnant! It's surreal. We haven't celebrated enough, because we want to guard ourselves. But tonight we were realizing that we want to just be glad that for now everything is alright. God has been really faithful to us even though we don't understand all of this. I have my U/S on tuesday--please be thinking of us. we should see a heartbeat although I am only 22dpo.....my #'s are already in the 4464! so he says we should see a hb by the time the hcg reaches 6000. I will keep you posted. ↑
kellidp1998---- I know it is difficult when people do not seem happy for you. I actually had a girlfriend say, "Not again". This was the 1st thing out of her mouth when I told her and I just could not believe it. My family is always skeptically happy. My father is concerned that something is going to happen to me since I have beenthrough soo many times. He also hurts with every loss. Somewhat for my husband and I & somoewhat himself--as this is his grandchild. It is hard to know what people are thinking but I really believe the lack of enthusiasm has more to do with caring about you and how you will feel if something neg were to happen.----------------Racheld--I am unsure if we have spoken before but I also have had 2nd trimester losses- 4 to be exact. I am sooo happy to hear that you are now 28 wks. As I have said in the past 28 wks ia my goal. Its not optimal and I will still worry but I will also be extremely relieved.-------Lizzy Lizz- It sounds/looks promising. I'm praying for you---and everyone else for that matter! ↑
It is nice to come here and read reassuring news from you girls. I am going to wait until I meet with my Dr on the 12th of March before I can say the doses of the meds she advises but I will let you know. .............KELLI, I will be thinking of you Tuesday and knowing you will get to see your babys heart beating just gives me chills, it makes me so excited to be in your shoes again, hopefully sometime soon. I have been there and I know how that moment is mixed with such excitement and pure fear also. I am sorry that you can't just go in being excited but when we have faced losses it just takes the innocence of a 'normal' pregnancy away from us. That is why I beleive our friends and family can't always understand why we keep trying, they just haven't been there before. Things will be great! I can't wait to hear what the heart rate is and that your little one was moving all over the place for you to see! Great Luck to you! Keep us posted!!! ↑
man, you guys have some good-looking hcg #s. mine have always been low ...well with the ch pgs that is.
amy nog, 16 weeks, woo hoo!!! actually, lots of pregos on this thread. i think educating ourselves is key, and we hae to keep the doctors on their toes. unfortunately, it only seems to be the ones who have problems, like all of us. people who don't deal with this sort of stuff just seem to take the doctor's first word and are content with it. make em earn their living, by golly! ok, nuff of my soapbox. stac - never knew that husband #1 was SUCH a jerk, i wish i knew you then and you could have called me to get you at the hospital!!! :o( xoxo
liz
ps. hello to my omaha girls!! nice snow eh?? ↑
Iam soo upset today. I do not know what to do. This will be my third miscarriage in a row if so. I feel like I can't win. I am on lovenox 30/day after being hetero for both copies. I just want to reak down and cry right at work. My levels on 2/23 were 796 then on 2/25 they were 1029. I wish I really could just crawl into a hole and stay there right about now. Does anyone have any advice? I can't do anything now but wait to test again tommorrow and do another hcg test. ↑
I guess its safe to assume its not the gene mutation that is causing my miscarraiges if its going to happen again? Had anyone else had slow numbers to start out with? ↑
Wow- a lot happens over the weekend! First off, *CONGRATULATIONS Kellydp and Tracy * that news is SO exciting- hopefully we all won't be too far behind you. And Amy* thanks for the update with you! I'm so glad to hear everything is going so well. Liz* I'm keeping my fingers and toes crossed that everything will go well for you...it's looking good. As far as my cousin and her adoption goes it took them so long- one, because they already have children, I guess with the agency they worked with gave preference to couples w/o children(makes sense) and two- it was really challenging finding the right fit as far as birth family and them- a lot of birth mothers decided to keep their babies too after giving birth. It was just a LONG process. It has seemed to work out though- everyone is healthy and happy- all you could ask for. HeidiJo* I'm so sorry for everything you are having to go though- hopefully us girls here can help give you the support you need. Michelle* I don't have the exact same thing you do- I'm hetero C677T and Homo PAI-4g, currently not pg but trying, and I'm taking 3.6mg of Folic Acid, 10mg of B12, 600mcg of B6, and a 81 mg aspirin. Also as soon as I get PG (hopefully soon) I will need to go on Lovenox injections- not sure how much of that I'll need. Hope that helps. Alright that's my two cents for the day- take care everyone, as always, I'm thinking of you... ↑
Stac- I know it has been awhile but I wanted to thank you from the bottom of my heart. Your words and Hug warmed me. I am still having trouble getting over this. All the other losses were 12 weeks or less (that doesn't mean that anyone elses loss is any less hurtful then mine, I am sorry for everyone this is just and awful time). But this time to see the baby and how beautiful it was on 12/27 feet hands cheeks and then to have it ripped away is something no one should have to endure. Sorry it that was to graphic it just pored out. They have me on a prenatal vitamin and B12 1000mcg and 1mg Folic acid (which might not be enought) and a baby asprin. If I read correctly you are pregnant. I sure hope so and I will be praying for you either way. Your words truly touched me.
To everyone else who responded THANK YOU. It is nice to know there are other wonderful women who understand. (Even though I wish no one had to belonged to this group)
Someone posted about the women who do not truly understand the gift of there babies and I wanted to say I work at a college and see many pregnant women but this one women really upset me first she is smoking then when I go the cafeteria she is in line in front of me and buying a Huge Coke. Maybe I am being bitter but I just wanted to tell her to be grateful for her gift and to take care of her baby. But I bit my lip.
Again, Stac it seems like we have a lot in common. I hope all is well with you and thanks again. Also I did get my lab report and will post what they say later (when I get home from work)
Someone asked where everyone is located I am just outside of Chattanooga, TN. If anyone has a good doc PLEASE let me know.
Take Care Everyone,
Sandy ↑
Tracy--I'm sending hugs to you! Don't get discouraged yet! I've heard of hcg rising, but not quite doubling and then they start doubling the next go round so please keep your chin up! I am hoping this posts but if not I'll try again...Also, I posted on the other thread for anyone who can answer...I remember reading in this somewhere that someone posted about taking baby aspirin at the time of conception could up the risk of m/c later on. Does anyone know about this? I'm wondering if I should not take the baby aspirin around ovulation time when we start ttc next month. Thanks everyone! ↑
Sandy------I know what you mean. Walking out of the hospital without my baby and not being pregnant was absolutely horrible. You are correct, it is not down playing any loss because EACH and EVERY loss hurts but actually feeling your child move and finding out the sex kicks you straight in the face and knocks you on your ***! Not to mention having your milk come in a couple days later! I may have misled you, sorry. I am not currently pg. My last loss was this past Dec......18th to be exact. I am waiting for a couple additional tests prior to ttc. I'm thinking April.........hopefully it does not take toooo long. I can understand the bitterness. I think we all can. It is natural and I don't think you'll feel that way forever. I handled my sister-in-law's pregnancies well (and one coincided with one of my losses) and dealt with my best friends well also. There was one friend who recently became pg and I still can not handle it. It is a loong story but it eats me up.---Stay in Touch and just know that even though you will not forget, you will heal (at least most of the way). ↑
Liz----Thanks dear! I'm just happy that I have been blessed with a wonderful man this time around. Tracy--- Keep your head up until the next lab comes back. You never know. -------------Okay, everyone has been talking about the extra bleeding and so forth. I have the opposite problem. I m/c in Dec abd had a normal cycle in Januray. I then spotted for 3 days in February on cycle day #21 and have not started yet. This now cycle day #38 ...I think. I lost track...lol. NO, I am NOT pg. Done Hcg and hpt(2x)-----------------Talk about weird. ↑
stefkay- in answer to your baby aspirin question, I am homo with C677 and my high risk ob has me on baby aspirin knowing that I'm trying to get preg. asap. I ovulated last friday (hopefully in 2 weeks there will be a + on my hpt). I don't know what your doctor will want you to do, but I know there have been other women on this site who have taken aspirin all the way through their pregnancy. I don't think a low dosage baby aspirin will hurt anything. I will ask my doc. again when/if I find out I'm pg. I am curious though because the aspirin is a blood thinner so how can it cause a m/c if we have a clotting disorder? I thought we were trying to stop clots, so why would we want to stop taking something that thins it? man I'm getting tired of trying to figure out what to do and what not to do, it seems like everytime we turn around a doctor finds something else wrong with us! maybe that's why I stayed away from doctor's offices for so long. good luck to all! ↑
heidi jo - ok this nebraska thing is kinda freaky eh? i think that's 4 of us...3 omaha, and you in lincoln...tracy-
a nurse also told me about #s rising, not quite doubling, then catching up, etc. it's possible. hey, i've also had 3mc's in a row, and never even got to the 700's so you are doing much better than i ever have. (with exception of dd) never even made it to 100! anyhow, i similarly, know these last 2 mc's were not from the mthfr and it sounds like you're doing all that you can to control it as well. my dr then did lots of tests on egg quality and fsh etc. i'm a little high and have one working ovary producing sickly eggs. that's why if we have another failure at next ivf, think we may jump to donor egg. so hang in there, i know how nerve-wracking it is to wait and hope and pray, wait and hope and pray. but i will pray for your strength through all of it and will pray even more for good results. let us know when you find out. we're all here for you. liz ↑
Hi kim, yes my dr. advised for the baby aspirin and I'm just taking it everyday even though I am not pregnant yet (and will continue on it through pregnancy, if I get there :-) The reason I ask is that I read online (I know, I shouldn't do this) that aspirin taken at the time of conception can increase the risk of miscarriage. I read more today and found that 1. I don't think they specified if this was baby aspirin or regular dose and 2. the study didn't specify if this also holds true for women taking aspirin for a clotting disorder. I'm just going to stop searching because it just freaks me out. I read it somewhere posted in this thread and I remember it striking a cord with me because this last m/c I took baby aspirin the whole month that I conceived. I only took because I heard it might help lining---I had no idea I had MTHFR at the time either so I stopped taking it on bfp day....just wondering if anyone else had info on this... Thanks! ↑
Hi all,, I wanted to let everyone know I got my other set of blood tests back today...and guess what my number more than doubled! It went from 1029 to 2633 and also my progesterone is 42.6. Isn't the progesterone a little high for only 5 weeks? I am going to ask my nurse about it later. I thought I would let you all know since everyone on this group has been soo supportive of me and and of each other. I hope the lovenox is working:)
Tracey that is great! and I would only be excited about the progesterone! Mine was over 40 as well.
Thanks to everyone for all the congrats and thoughts. I did have my ultrasound yesterday and all looks good. There was no heartbeat yesterday, but I was just right on the borderline of maybe seeing one...so I am trying not to worry about that. We were so excited to see NO bloodclots yet. Which was an improvement from the last "first ultrasound". Thanks again. We go back next tuesday for another scan. Hopefully then we'll see a hb. ↑
I don't remember if I ever posted after finding the results of some of my old pathology reports. I had found out that my loss in 2003 was due to infection, as was my current loss. Then I found out that my loss in 1999 was due to MTHFR. I am waiting on the reports from 2002. My OB put me on antibiotics after leaving the hospital in Dec. I went a month later and the culture just came back positive. I tested positive for this same culture back in 2003 (after the loss but they told me it was not related). So, now I am waiting to hear how we will handle it and if I can ever completely get rid of it. Doesn't that bite! I learn about the MTHFR and take the appropriate measures and this bleepin infection will not go away. It is called Ureaplasma and like everything else in our world it is not known how much it contributes to m/c. It is a "natural" bacteria that people carry but will manifest if in the uterus when pregnant. Geee, just my luck. Cheers to the "wait and see" game.--------------------tracy72-- I am sooo happy for you. I was really worried but didn't want to be pessimistic. Congrats and Good Luck! ↑
Tracy ~ This is great news! I am so happy for you. And ****Kelli ~ this goes for you as well. :) Congrats to both of you! Kelli, with my first sono (well that would be first sono after 2 m/c) back in December, we went in at 6 weeks. There was no heartbeat, and I was so upset as you can imagine. However, I knew that according to my ov kit I had ovulated late (about 2/3 days). The doc said that this could absolutely account for the lack of heartbeat. Sure enough, 5 days later, there was a heartbeat! I am now almost 17 weeks....so keep the faith. I am trying to stay optimistic, but as I said in an earlier post, I wonder every day if something will go wrong. ****Liz, I remember that we talked about being kindergarten/pre-K teachers. Today, one of my little students bum rushed me on the playground (in an effort to hug me I think), but I was so worried about jarring the baby. I swear...every little thing makes me paranoid. Best of luck to everyone here. :)AMY ↑
Hi, all, it's been so incredibly valuable and inspiring to read all of yoru posts. I was diagnosed as compound heterozygous in December after trying to conceive for two years and suffering a double miscarriage at seven weeks and two chemical pregnancies. I immediately began taking Folgard, a baby aspirin, and a prenatal vitamin, which appears to be the most commonly recommended treatment. ↑
We just had a positive pregnancy test eight days after conception and a positive hcg test of 45, so I am waiting to see if this will be my third chemical pregnancy or if I'm actually pregnant. Both of my previous chemical pregnancies evaporated in 48 hours. Has this happened to anyone else? My doctor seems to believe that MTHFR is the culprit. ↑
No, that hasn't happened to me. I have just had miscarriages later where the babys heartbeat stops. I am sorry for your losses.
CONGRATULATIONS!!! is the important thing now.. I am sure all is well and soon you will have your little bundle of joy God has intended for you. Try to relax, I bet you will be great! I am jealous and can't wait until I can announce the same! Take care! ↑
Hello ladies, I have been on this thread for one year this month. I had 3 m/c (2 chem) before I got on the vitamins and aspirin. Elene, my last chem was gone within 48 hours. I am now at an infertility clinic and am proud to say that we are 7 weeks pregnant. Tracy-read carefully! My numbers were just like yours (both the actual number and the doubling/super doubling issue.) I went yesterday for the ultrasound and there are TWO heartbeats! I am having TWINS!!! I was very relaxed this time about getting pregnant and decided not to check/chart/temp anything. I didn't even test until a day after I was supposed to start. I really believe this attitude helped. I can't say that I was as relaxed once I hit the pregnancy rollercoaster. I convinced myself twice (that lasted for days!) that I had lost it/them. I promised myself I would be more relaxed after the heartbeats. So far so good. I have been on this journey for 18 months and it seems like a lifetime, but now I see the timing is perfect for twins. (my son will be 3 next month) what I'm saying is keep the faith--God has a plan that will work. Although I hated being left out of His loop, and no matter how much I pushed, He stuck to the plan, it is all working out. Tracey ↑
okay-- I haven't been on in a while but I wanted to let everyone know that on Friday we gave birth to a new baby girl! She is my gift and my husband and I could not be happier. She is 6 lbs and 11 oz. We were induced at 38 weeks due to my size and MTHFR. After 12 hours of labor wehadto have a section. zthe baby was face 1st and Iwasn't dilating. it was great to log on and read so many great things. You all bring tears of joy to my eyes. All of this stress over the past year has been instantly erased. Good luck to all! ↑
Frodo ~ Congrats on your baby girl! What an inspiration it was to read your post. :) ****And Tracey ~ I am soooo happy for you. Twins! Wow. Now we have 2 pregnant Traceys/Tracys. I am still hanging in there at 17 weeks and counting. I eat my folic acid like candy and just hope each day that this pregnancy will work out. Best of luck to all...I think of each of you everyday! AMY ↑
Frodo CONGRATS on your baby girl!!! WOW how exciting!! And congrats to all the ladies who have just have found they are expecting. And to everyone who is still trying - KEEP YOUR HOPES UP! Amy I think of you often too since you aren't too far behind me. I am 21 almost 22 weeks and expecting a baby boy. Have you felt the baby move yet? The best joy in the world - after experiencing 2 mc's - is feeling the baby move and MAN does he move! He is kicking up a storm and last night my husband put his hand on my belly and could feel the baby kicking too. I think this has made it feel SO real for me. Plus the baby is very healthy! We had a 3D ultrasound because I am on Heparin the doctor won't do an amnio and I opted to not do any sort of triple screen since the false positive rate is so high (and I wouldn't do anything differently if something was wrong). Anyway - the organs all look great and the baby was rubbing his nose and looking so cute!! I read earlier from Stac that she had a ureaplasma infection which they discovered early on in this pregnancy for me (along with the MTHFR homozygous) and they put me on antibiotics saying that it could have caused a previous miscarriage. Well I just saw a friend from high school who lo and behold is an OB/GYN at Cedar Sinai in Los Angeles and told her about the Ureaplasma and MTHFR and she said that most women have the ureaplasma bacteria present and don't know it and that it wouldn't have caused the miscarriage...but I still wonder (and we never got the results of any tests done no matter how many times I called Kaiser's lab). It's funny how all doctors seem to have different opinions on treatment and what could/would cause a miscarriage. ↑
