Hi, I just had my thrid misscarriage on Monday and had my thrid d and C. All pregnancies have made it to the 9 and 10 week period. The frist two misscarriages i did not know why. However i was diagnosed with one copy of factor V leiden and two copies of the MTHFR mutation. this is why the doctor perscribed Lovenox injections and folic acid and baby asprin. Unfortunately, even with all these meds i still had a misscarriage. Is there anyone out there who has this and has had a full term baby...is there something that i am missing? is there something that i am not doing. i cant bare to think about going through this again...it is so disheartening. thanks for listening... ↑
Hi Mollydevery~ I'm so sorry to hear about your losses. I can't offer you much information. I have both copies of MTHFR and have had 1 miscarriage and have not been able to get pregnant since. If you have the time to read through some of the very early postings you might find some other women who had multiple miscarriages and went on to have a healthy pregnancy and baby. I understand how you are feeling, my miscarriage was at 11 weeks. I'm truly sorry for you and my heart goes out to you. If there is anything I can do, let me know. I don't know if this will help, but we named our baby and it helped me to get through the beginning. Its been a little over a year since I lost our son. The hurt never goes away, it just changes. You are a mother of three. A book that I found very helpful was Silent Grief, if you can order it, it may help you through the hard days. ↑
Hi, I am new to this topic, and have read many of the posts but there are too many to read while I'm supposed to be working. I have recently been diagnosed with Factor V Leiden Thrombophilia (heterozygous) and elevated homocysteine, for which I am taking 3mg Folic acid, 81mg aspirin, and B6 and B12. This week I am getting bloodwork done to test for the MTHFR thing. With the other problems, is it a foregone conclusion that it will come back positive? That seems to be what I have been reading in my "internet research". I am 35, never have been pregnant (that I know of) but my husband of 2 years and I are trying to conceive. The only reason all this came about is because I had a DVT 2 years ago, and they're finally now making the connection. I am beginning to wonder, at my age and with these complications, if we should even try, although I want a baby very badly. I've seen some success stories on here, but some heartbreaking ones as well. ↑
I have been trying to read every post so get as much information as possible. I am 27 yrs old. My two pregnancies were detected with neural tube defects. The first one was diagnosed with anencephaly during week 13 (April 07) and the second one with spina bifida also during week 13 (August 08). For my second pregnancy I was on 4 mg Folic acid and prenatal vitamins. After my second loss, my OBGYN suggested blood work to test my folate metabolisms and found out that I have MTHFR mutation. I have no further details at this point except that my OBGYN said that I had 2 copies of the mutation. Does anyone know what that means? I have requested an appointment with the MFM for consultation at a nearby hospital on suggestion from my OBGYN. Has anyone had a similar experience? How did it work out for you? ↑
I'm new to the forum, but wanted to put in that I'm combined Heterozygous MTHFR and found out after 5 miscarriages. I recently had another preg loss-ectopic preg I carried for 11 1/2 wks. Longest, yet! Had to get a tube removed, but still able to get preg, just haven't been able to carry. I am possibly preg again and will do a test in about a week or 2. I have a team of DRs for when I do get preg, due to being high risk. If anyone else has any more info on combo het mthfr, please let me know. Any, positive testimonies and such.
I'm a little scared to be preg again after the most recent, which has been the hardest. I'm 33 and am very ready to be a mommy. ↑
I had my 5 mc about 4 weeks ago, and out of depression and frustration I started researching. I spoke to a woman who had 2 healthy children with the help of Dr. Kwak-Kim out of Chicago. We wasted no time in scheduling an appointment and we just left her office about 4 hours ago. (It's worth the trip)! I received more information in 2 hours with her and her team then I have in probably 3 years. They did a series of blood tests and the results won't be back for 2-3 weeks. They also did a very extensive ultrasound. First and foremost I knew I had MTHFR going into the appointment, however she was great at explaining how it all works. I am have the double gene, which means I am at a higher risk for cardiovascular disease and reproduction, basically both my parents carry the gene and I got one gene from each of them. With that being said, she explained that now folgard doesn't digest (I think is what she said) the way a person carrying both genes needs it to, and gave me a prescription for Metanx (she also gave me samples). This is something that digests properly the way it needs for someone who has the double gene mutation. I will need to take 1 pill a day forver, that's fine with me if it means I have a longer life and less risk of cardiovascular disease. From the ultrasound they could tell instantly that my blood clots and I am on the higher end which means before/during conception/pregnancy I will need to start on levenox. I will know more in two weeks, but I really feel so much better today! Oh, also I am suppose to along with metanx take regular pre-natal vitamins which are good for the baby. We won't be trying to the new year since we just had another mc but this gives us lots of Hope. I would highly recommended considering meeting Dr.Kwak-Kim and her staff, I wish I met her 3 years ago! She knows what she is talking about, it is a very pleasant feeling when leaving her office! ↑
