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I experienced a miscarriage on 9/29/19. We went in for our level 2 ultrasound to find out our baby’s gender. After a ..less than perfect pregnancy (hyperemesis causing me to lose 26 pounds, anxiety, etc) we felt like finally we had a positive, we could focus our energy to painting baby’s room. As first time parents, we didn’t find it odd that the ultrasound tech spent over an hour looking at our baby, we thought she just couldn’t find baby’s gender. It wasn’t until the high risk doctor came in and told us he had bad new that it hit us. We found out that our baby was a sweet little girl, and also that she apparently had skeletal dysphasia (a form of dwarfism), and that she was in heart failure due to this (her rib cages weren’t growing, which in turn was not allowing her heart & lungs room to grow). At this time, we were hoping for a miracle, knowing that it didn’t matter to us what our sweet baby looked like, we would love her unconditionally regardless. The doctor suggested an amnio, which we did at that time. The doctor then told us that the condition was lethal and our baby had no chance of survival. If our sweet girl survived the pregnancy, she would pass within hours of birth due to her not being able to breathe. We were beyond devastated, how could this happen to us? I spent the next 2 days crying, wanting our sweet baby to survive so we could meet her, but knowing that if she did, she would suffer for the short time she was with us. 2 days after the ultrasound, we went in for a follow up appointment with regular OB and they could not find her heartbeat, an ultrasound confirmed that our baby went to heaven. I had to deliver her, and we spent hours holding her, remembering her every feature. I would strongly suggest this to mom’s of angels.. I will never forget her hands, feet, ears, nose, mouth, etc… She was truly perfect and I think about her little features constantly. Moving forward, the amnio came back normal. We went to a Geneticist. She shared that in her opinion, our sweet girl does not have skeletal dysphasia, her bones are normal sized.in fact, she went as far to say that she had no reason to believe that she had SD. Just to be certain, her xrays were sent to California to a SD specialty group. The results will not be in for at least two months. We are scared of the results. What are the chances that this will happen again? We would love to be parents. To make our sweet baby a big sister, but mentally, don’t feel like we could handle not being able to keep another baby. has anyone been through anything like this? Any insight would be greatly appreciated.....
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