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angelkitty, thank you so much for your comments. Your story gives me hope and I feel better now about getting the myomectomy. My surgery is scheduled for December 14. After the surgery, I was told to wait 6 months before trying to get pregnant again. The surgeon I'm using is very experienced, he says that he performs this type of surgery on a weekly basis, so I feel like I'm in good hands. Now I just want to get it over with so that I can move on to thinking about another pregnancy. Thank you for your words of encouragement. I feel more hopeful about the future now.

To all of you above that have had to cope with a loss. My story has a happy ending. After having my first baby the growth of 2 fybroids was noticed luckily they did not obstruct the birthing ca___l and my first girl was born naturally. Ten years later I and pregnant I started having terrible pains in my abdomin and at 5 months was admitted to hospital and told that if I was to go into labour the baby would not survive. So after 1 weeks bedrest and giving up work the specialist informed me that I would need to take things easy as the first fybroid had grown to the size of an orange and was blocking the birth ca___l and two more were also growing rapidly. So a c section was on the agenda and a removal of the fybroids at the birth. I was informed that I too may not make it through the birth as the fybroids could cause me to hemorrhage and bleed to death. I managed to keep my baby and the surgeons were wonderful. I had survived and so to my wee girl. But we are wanting another baby and I'm not too sure whether I could cope going through this again. Also I'm very scared that the fybroids could return. My wee girl is now 2.

I had a myomectomy for fibroids, developed an ilieus, ended up back in ER. Seems my intestine and looped inside the incision port. I was having nausea, vomiting and pain. Anyone experienced this? I hope this isn't a sign of more difficulty to come. I removed the fibroids in hopes of getting pregnant later, but after all of this I'm not sure.

I see you posted a few years ago. How was your success since then? If you don't mind sharing.

Hi- I am new here and happy to find this forum. I am saddened to read so many stories similar to mine, but glad to know support is out there. Like many of you I lost a baby during pregnancy, Adora Webb, and had a myomectomy last April. We became pregnant on out first try just three months post surgery. God is truly good. I was wondering what other people experienced in their pregnancy most myo. I am 23 weeks and have had a lot of cramping, even bleeding. Early in the pregnancy it was so bad the doctor thought we had lost this child too. My OB says the cramping is due to the scarring being stretched. I really hate the feeling as I have already had a miscarriage and know what those feel like. One relief is I can feel the baby move during the cramping so I know he/she is still okay. Thank you for you time in replying and my husband and I will keep you in our prayers.

violinwebb...how are things going? I saw your post and wanted to check on you. If you can feel the baby moving I would say things are just fine. There is probably a lot of scar tissue and that is what is causing the bleeding but then there are people that bleed the whole time they are pregnant and go on to have perfectly healthy babies. I hope to hear good news from you.

Thanks angelkitty for checking in. Thankfully no cramping in the last 2 weeks almost! Nearing the end of the 2nd trimester and so far so good. We have my diabetes check tomorrow so hopefully that will go off without a hitch. I still get occasional pain like what I did after my myo, but like you said it is probably scar tissue and the added growth of the uterus. My ob is not worried. Thanks again!

I had 11 fibroids removed in a hip to hip bikini myomectomy. The largest one was grapefruit size the two smaller were orange sized and the other golf b___s. I was told I could try again after 6 months but it took over a year to become pregnant after several fertility rounds. I am currently 29 weeks pregnant and several fibroids have grown back. the baby kicking on them is extremely painful and the scar tissue is tearing as my uterus grows. The pain is incredible. I was hoping to find a forum of women who were pregnant after a myomectomy but this thread should probably be TTC (trying to conceive) after a myomectomy. My condolences for all your losses. I have had my share of losses and I feel so grateful to actually get the family we have always wanted. My doctor told me the fibroids I have now will go away after the pregnancy. Due to my age 42 it is unlikely tI will need anohter myomectomy. Which is great because that was the most painful operation ever!

I had 11 fibroids removed in a hip to hip bikini myomectomy. The largest one was grapefruit size the two smaller were orange sized and the other golf b___s. I was told I could try again after 6 months but it took over a year to become pregnant after several fertility rounds. I am currently 29 weeks pregnant and several fibroids have grown back. the baby kicking on them is extremely painful and the scar tissue is tearing as my uterus grows. The pain is incredible. I was hoping to find a forum of women who were pregnant after a myomectomy. My condolences for all your losses. I have had my share of losses and I feel so grateful to actually get the family we have always wanted. My doctor told me the fibroids I have now will go away after the pregnancy. Due to my age 42 it is unlikely tI will need anohter myomectomy. Which is great because that was the most painful operation ever!

violinwebb thanks for your post. i have been in so much pain and it is great to see I am not alone in this. I bleed so badly during the first trimester I had two doctors tell me that I had miscarried and my uterus was empty. I cried for a week . thank goodness I didn't have a ER d&C because when I went in to my regular doctor she said they baby was there lurking behind a fibroid. Seriously I bleed so much I can't believe anything lived through it but I am in the third trimester now. weasell55 I didn't know they could remove the fibroid during the C-section. I will ask about that.

kikisf thanks so much for your post. i'm really grateful to chat with someone who, like me, is pregnant after a myo. I too bled and cramped so badly during my 1st trimester my doctor thought we had lost the baby. i had had a previous miscarriage so i knew what it was like and this was literally identical. it took many days to get to the doctor as it started on the sat of labor day weekend and we could not be seen until tuesday. unlike you i am still fibroid free, (myo April 27 2001- conception early Aug 2011). we were very blessed to get pregnant the day we were released from surgical restrictions! so my bleeding is believed to be from the uterus stretching (there was even mention of loss of twin, but i really don't feel like that was the case). i have continued to have cramping most of the pregnancy but it has stopped the last few weeks (we are 27 weeks now) We continue to get good reports for the dr and she monitors my pain, but is not overly concerned. I hope you and your baby continue in health. I don't know if it gives you rea__surance, but the farther along I get the better I feel about this baby making it. I think pregnancy always has an element of anxiety, but I think this is made worse for women who have experienced issues like ours. All the best, and I am happy to touch base anytime.

Wow! There are so many stories on here of incredible loss and I am so sorry for that. I like the rest of you have fibroids. I found out I was pregnant 12/26/08 and mid January I started having terrible pains in my stomach & ovary area. I went to the ER and they did an ultrasound and referred me to the OBYGN clinic of the hospital. The Dr came in the room and said "you have many tumors in your uterus. The largest is the size of a grapefruit, an orange and then go down to the size of a dime. I'll see you in 4 weeks." I was mortified! She didn't explain anything else. So I went to 3 different Dr's trying to find one willing to treat me. I finally found my amazing Dr!! He explained to me that these were benign ma__ses and all that came with them. He could feel them by doing a pelvic exam and couldn't believe I hadn't had issues with them before, this didn't just pop up over night. I had a lot of pain throughout my pregnancy, was on Vicodin and Motrin pretty much the whole time, about an ER trip once a month to get stronger pain medicine because I thought I was dying. I was put on bed rest in April and my daughter was born July 25-3 weeks early by date but she was the size of like 30wk baby. Her cord was wrapped around her neck and it had 2 knots in it. They think this was because lack of space, like she was getting herself wrapped up trying to move around. But she was out of the NICU I have been having pain off and on since then and it is getting so bad my Dr had to do something else. He had given me the Mirena in hopes to shrink them- it did nothing. So on March 14 I will be having the Myomectomy and I am very excited to have relief from the pain besides pain medication (I obviously can't take them with a very active toddler). I was wondering: What the healing process was like? How long did it take you to start feeling good? Did you lose any weight? Are physical activities better? (I have trouble sometimes during s_x, in different positions because of the placement of the fibroids. Also bending over a lot to work out or clean hurts me) After reading all of the stories on here it is very likely we will try to have another baby after it's proved so difficult for others. I truly appreciate any info you have to share!!

Kikisf- I have spoke to a few different Dr's and they have said they don't like to remove fibroids during a Csection becuase of the bleeding... With the fibroids, it's already a more dangerous Csection and if they try to remove them during the Csection the risk of bleeding to death is astronomically high. Even with my many and huge fibroids, I still delivered v____ally with no problem. Except her cord being around her neck of course...

Sorry to add on to my already long post... My dr and surgeon's told me to wait at LEAST 2 years to get pregnant as to let my uterus heal fully. The quicker you get pregnant after, the higher the risk of complications. And as I'm sure all of you ladies have been told, the only way to cure the fully is getting a hysterectomy.

Hi bmmiliken. Sorry you are having so much trouble with fibroids, but am glad you were able to carry your baby. I too had large fibroids (but only 2) and had an open myo April 27 of last year. I woke up in the recovery room quite alert, the nurses were surprised at how well I did. I think the highest my pain ever got was a 4- they will ask you to rate your pain on a 10 point scale. Morphine was my friend and I was kept mostly comfortable. My doctor encouraged me to walk in the hospital and I did that like 7 times a day. I needed help at home for about a week, I couldn't pick up a bottle of soda (2 liter) for example. If you have a child you may not be able to lift him/her. My mom came and stayed with me so my husband could go back to work. I slept a lot the first few days and took one walk a day outside. Most of my time was spent on the couch. I was not allowed to drive for quite a while. I started slowly back to work (from home) at about 3 weeks out. At about that time I was able to go to the grocery with my husband but had to use one of those motorized carts! I did not lose weight (tumors weighed about 1 lb) My stomach shape did change for the better, the tumors poked out before. The pain is totally gone though mine wasn't as bad as your sounds. The recovery was not as bad as I had been prepared to expect. I was told totally recovery 6 months. I worked out and did acupuncture prior to surgery and I think that helped. I was just so grateful to have my fertility back and that the surgery had been so successful, I think that really helped with recovery. We were told we could conceive 3 months post surgery and got pregnant right away! Baby is due April 25- 2 days shy of one year anniversary of myo! Best luck, for us it was totally worth it.

2 years! Wow that is long. I was told 6 months although 1 year is the norm. Yes my ob/gyn told me the same about removing fibroids during Csection. It is a big no-no. I had 3 doctors tell me I needed a hysterectomy because the size and placement of my fibroids. They were too difficult to remove. (not what you want to hear when you are trying to get pregnant with your first) At minimum I would have to sign an informed consent meaning I could go in for a myomectomy but might wake up with a hysterectomy. I finally found Dr. Jacobi at the fibroid clinic at UCSF and she said not only could she do it but she thought informed consent was barbaric and s_xist. she said if she had a problem removing something she would sew and wake me back up and ask me. What the healing process was like? I was in sooo much pain it was unbelievable. In the recovery room a woman next to me was crying for meds. I thought to myself angrily that if she was in that much pain she wouldn't be able to scream so much. I literally couldn't talk or move to motion I needed pain meds. Make sure you get enough pain meds when you are discharged. You don't have to take them but you don't want to end up running to ER 24 hours after being discharged like I was because I had inadequate meds. The first week I needed help sitting up and going to the bathroom. By 3-4 weeks I was able to walk down one block and back but it was the longest block ever and would completely exhaust me. ( I do live in San Francisco so it was an incline) I was told to take 6-8 weeks off from work. I went to work at 7 weeks but it was extremely difficult. I couldn't sneeze, laugh, cough or sing without pain, also walking up steps and lifting things was completely out of the question. I was told not to lift more than 5-10lbs. I can't imagine what it would have been like if I had a baby at the time. When my husband went back to work I had a friend come by and wash and cook and help me to the bathroom in the day. How long did it take you to start feeling good? I started feeling OK at 3 months but it was more like a year. I had a short lived myomectomy blog. If you want to view it just PM me for the URL. Did you lose any weight? Initially yes but surgery makes you retain water and 2 months in bed recovering with no exercise ruined any weight loss for me. However my belly was flat for the first time in my life. I had a bit of a belly that I had attributed to aging but it was fibroids. Right before my surgery people sometimes mistook me for being pregnant. My belly was much flatter and after. Are physical activities better? (I have trouble sometimes during s_x, in different positions because of the placement of the fibroids. Also bending over a lot to work out or clean hurts me) I had bad si joint/b___t pain that went away after the surgery, however because I lost my core strength and I ended up herniating my back. Insist upon a physical therapist! I tried a personal trainer but that didn't work. I needed PT and baby steps to get my ab muscles to engage again. It took 1+ year to get my core strength back. S_x in certain postions was painful before the surgery for me as well. But s_x was very enjoyable. It took a long time to have s_x after the surgery because I couldn't stand the pressure on my abs. Plus we were told to abstain. When I finally healed enough to have s_x it was not enjoyable. Meaning I had no pain and could do positions that I previously couldn't but I felt dead down there. I decided to masturbate and when I orgasmed I had contractions and cramps that were painful, lasted 2 hours and required motrin and a heating pad. I thought I would never enjoy s_x again. These cramps went on for about 3-4 months. they have since gone away but I don't enjoy s_x as much as I did. My orgasms are not as pleasurable and I don't excite as easily. But this is one of the risks of both myomectomy and hysterectomy. I am now 33 weeks pregnant and wouldn't change a thing. BTW I had a few periods take me by surprise. I had never had a period without PMS cramps before. It was amazing to not have that pain anymore. I didn't know it was possible. Now I just keep track of my period and wear a panty liner in anticipation. Violin webb I am glad your preganancy is going well. So sorry to hear about your previous loss. I can imagine that labor day weekend was the longest ever!