Possible Conjoined Twins

9 Replies
fulltimemommy - May 28

Hi Everyone! I'm new here, but I'm not sure that I'll be staying. This may be long, so please bear with me. I guess I should start at the beginning. I'm currently seeing a male doctor, but I do feel more comfortable with female doctors...and I'm not real happy with the male that I'm seeing. I've seen him a few times this pregnancy just because I couldnt get in to see a female earlier and I've had some spotting. Well, I've been on a waiting list for this one female doctor here, and she called last thursday to say that they had an OB cancellation, so I could be seen then at 1:30!! Yay!!! GREAT news...and of course I hopped on it thinking I'd get an U/S or something....fun! Well, I haul my 2 year old into the office and we wait an hour and a half for the doctor to come in and say the words I did NOT expect to hear....."your pregnancy test came back negative".....WHAT????? My levels were 5400 at 21 dpo, even if I were miscarrying the test should STILL come back positive! I was like " there is NO way!" So, she asked me about my spotting (which I've had miscarriages before, and I KNOW I had not had a miscarriage) and decided to send me to the hospital for an u/s because they were better than the ones she had in the office. I went down to the hospital with an empty heart and not knowing WHAT to believe. Camden and I waited another hour before we were finally seen and the ultrasound tech did the regular ultrasound first (on the tummy) and she was like " she said your test was NEGATIVE?????" Well, then she said she saw the one baby with a fabulous heart rate, but she also saw something else, so she needed to do a trans va___al ultrasound to look into that further. We did the transva___al and she looked at the other lady and was like " Go get the doctor"....so then the radiologist came in and looked. To make a long story short, the radiologist called my regular ob and she cancelled her two last patients of the day and rushed to the hospital! Once everything was FInALLY explained to me, I was NOT ready for what I was about to hear. Apparently baby williams has a buddy to share the womb with for the next 7 mos...However, we are heartbroken and scared out of our minds because there was only one heart beat and it appears that the two are "attatched" Both of the babies are measuring exactly 7 weeks and 3 days, and they arent sure at this point what is going to happen. They arent sure if the babies are laying on top of each other and the hearts are beating in unison, OR if one heart beat just cant be detected yet (apparently there are reported cases of this), OR they could be conjoined and sharing a heart The babies are so small at this point that they really cant see a lot to make a clear diagnosis. The babies may just be laying together......**wishful thinking** The doctor said that she wants to schedule me with a high risk this week to get a level 2 or 3 done and see where we stand from there. My doctor said that the most common place for conjoined twins to be connected is the chest...most of the time they share a heart and one can not survive! We are absolutely DEVESTATED over this news, and although I'm trying to keep my spirits high....I am scared out of my mind! The internet does NOT help that any because I've learned since I've been home that the majority of these twins do not survive The heart rate of the one baby (or both) is looking fantastic, and since both babies are measuring exactly 7.3, I'm praying for a miracle!!!! Ok, so after ALL that, I'm wondering if maybe any one has heard of these things happening so early in pregnancy....I mean I WAS only 7.3 weeks at the time....please someone share a hopeful story with me :( PS...in case your wondering, the case of the "negative pregnancy test" went unsolved. My doctor said it was likely a defective test!

 

babybradley - May 28

Good luck!!!! I wish the best for you and your family....... Let us know!!!!!!

 

freebird - May 29

I wouldn't freak out just yet (I know, easier said than done) but 6 weeks is really early. Try to stay positive, the level II u/s may reveal something different. Good luck!

 

fulltimemommy - May 29

Ok, so I said I was going into my regular OB today right...and that I wouldnt expect any news, but I had some questions for her. The second she came in, I asked for another ultrasound today just to confirm at least one heart beat so that I could feel comfortable going to the peri on Thursday. I just have this "icky feeling" ....very similar to that of the feelings I had right before we found out our last baby had pa__sed on. I had lost 4 lbs in 5 days (I've been terribly sick this time), and I feel like my pants are falling off...when they should be getting tighter. She agreed to an ultrasound and sent me over right after the appointment. While she was writing her order, I started bombarding her with the other questions that flooded my mind over the weekend. I asked: Could this be a possible singleton pregnancy and maybe it was something else you all were seeing on the ultrasound? Her response: No way! After the radiologist, tech, AND she had looked at the ultrasound, they felt that there was definitely another fetus looking object beside the baby, and it just so "happens" it also measures the same AS the baby. I ask: Could this be a possible twin pregnancy where they are sharing the same sac, but lying next to each other. (remember that they never mentioned this at my visit...I was hoping that this could be the case, thus offering it as a scenerio...but they never brought that up. They kept saying it WAS a conjoined twin pregnancy) Her response: Very unlikely. I say: why is that? She says: It just looks different, and we would have been able to tell that from a v____al ultrasound I think I ask: Is it possible that the twins could live: Her response: Lets cross that road when we get there. If there is no fetal heart beat today, then I suggest an immediate D&C this week, if there IS a fetal heart beat, we'll send you over to the peri on Thursday and just go from there. Ok, so now I'm REALLY feeling pretty cruddy....I'm thinking this baby is gone already! I just had this "feeling"....Unfortunately I've felt it before. Before the u/s she also sent me down for some blood work to gather betas yet again, and blood type (which was totally stupid....I've had 5 children...I think I know what my blood type is! grrrrrr) They do the ultrasound and the tech says " they saw this conjoined twin when they did the v____al...or the other" I said " well, she saw it with the probe, but she had to do transv____al to see it better"......we only did the tummy probe today. She pulls another more experienced tech in (the one I saw on Thurs was gone) and they read the report from Thurs together....then they tell me " I dont see ANYTHING but ONE healthy baby".......Ok.........I'm SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOoo FREAKING CONFUSED!!!! What the HECK?!? So, let me get this straight.... I go to the doctor, she tells me my pregnancy test is NEGATIVE I get an u/s where they tell me there is 2, and that they are likely conjoined NOW they are telling me its just one again.....LOL! I am very happy to report that the one little baby's heart beat is awesome and just fluttering away in there. What I'm not sure about, is where they got this other "thing" they called a conjoined twin from?????? Granted, today I only saw techs (not even a radiologist), but the radiologist on call said he was confident in their findings and sent the report back to my ob. They also did not do a v____al. So, my doctor told them to tell me to come back at 1p to see her. This I did.....My betas were now 95,400 and are doubling every 127 hours...which is normal for a SINGLETON pregnancy...right????? She did tell me that she was NOT confident in their findings because she saw the other "thing" on the ultrasound that day as well...and so did the radiologist on call. She said first of all, they did not do a v____al as she requested...I guess this was the biggest thing...but I SAW the one baby today myself! Soooooooo today we are surprised and left not knowing what to think again...I cant WAIT to see what happens on Thursday ROFL!!!!!! This poor child!

 

samehere - May 29

Sounds like it could have been a mirror imgage from the u/s. What amazes me is how quick everyone was to jump to the worse side of things. Congrats on your little one!

 

delia101 - May 31

Wow sweetheart you have definately been through the loop! I pray that everything works out for you and please continue to update us.

 

snugglybugglys - June 1

Hi, just wondering what happened on Thursday? Hope everything goes well! :)

 

DANI - June 2

Hi, I've been following your posts and I do hope that everything is ok. Please update us when you have a chance. My thoughts are with you.

 

snugglybugglys - June 8

bump

 

MrsShelton217 - June 22

bump. I wanna know what the update is. I hope everything w/ the baby(or babies) is fine.

 

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