1 146 Risk Of Down Syndrome

123 Replies
Kaz - September 5

Hi everyone, I have just caught up on all the forum news. I am really happy for Heart and Trish that all is well. Such wonderful news. August was quite hard for me as that was when I was due. I am not at all upset by Daisy's remarks, I know she is not a mean person. it must be hard to read something like my story when you have been trying so hard and it would seem I have just thrown my chance away because it was not perfect. I had to act for myself, my husband, my other children and from the advice and support I received from where I was treated. Something that has left a mark forever. It is of course an ethical issue that has come about with new technologies and testing which was not available in the past, and these test morals and religions as to what is right and wrong. Unfortunately as I am 45 years of age, the odds were already against me with a ratio of 1:20, but of course I did think of this when I fell pregnant. I have to disagree with daisyusa in that whether she believes it or not you cannot have a false-positive amnio result. Take care all of you, Kaz

 

CaliTrish - September 6

Kaz - it's so good to hear from you. Glad to hear you're holding up okay. I've got less than 5 weeks to go. Wishing you and yours peace & happiness.

 

Heart - September 7

Thank you and congratulations to you too, Dee & Marranie! Only 5 weeks to go Trish. I'll be thinking of you. All the best!

 

Hermans Mom - September 7

I am 19W and turn 40 this month. I had an ultrasound last week and the results look "normal". I saw the midwife yesterday and asked her about the triple screen bloodtest and she said I didn't have to have it. So I have declined it. This baby is a done deal for us and we will deal with any issues if and when they arise. Everything looked good on the ultrasound and why get a blood test that may give me a percentage of stuff to worry about?

 

ibk8t - September 7

I totally agree with you.....if you are content to continue the pregnancy no matter what there is no point....and coming from somebody who was given a 1:8 chance of downs from the blood test, (the baby doesn't have any chromosome abnormalities, I did the amnio, wouldn't have been able to go the rest of the pregnancy not knowing after that) I would highly recommend not having it. In my opinion it's practically meaningless. If you really need to know go straight to the conclusive testing like amnio or CVS. Good luck....I'm 20 weeks...when is your due date?

 

daisyusa - September 7

Kaz, I said some mean things to you and I owe you an apology. You coming on this forum and sharing what you did proves you are a strong person, not that you had to do that. You put yourself out on a limb by telling us you had an abortion. When I posted here, I had just had a miscarriage and was devastated, still am. I'm not going to talk about abortion becasue it's obvious you are in a lot of pain. I am sorry for calling you a murderer, but it's hard when my baby was taken away from me. I do pray you can forgive me for judging you, I'm not that kind of person. I am a Christian and I know God will forgive you when you are ready, although I'm sure you have already gone there. About the testing though, even though it is a fraction of a percent, there is still that chance. I know when we get pregnant again, I won't go through any of that testing. I've seen what it can do to us and it's not worth it. I've seen down's syndrome and some are severe and some not, those tests can't tell you that. Thank you for being strong enough to come on here. God bless you and your family.

 

veggiegal - September 17

I just want to say that I completely understand what you are going through and commend you for your choice. I have posted several times of here about my experience but will tell you. I was 35 when I had my 3rd child. When I was 20 weeks pregnant we found out that she DID have Down syndrome through amnio. The doctors gave us the option to terminate the pregnancy (even after I felt her kick) but we said no. We were sad and had to mourne the child we thought we were having. Now 18 months later I am pregnant again with my 4th and will be 38 when it is born. My daughter is a wonderful child who enriches our lives more than we could ever have imagioned. She is funny, smart, beautiful and everything you would think your own child is. She is a little bit behind other children her age but WILL do everything that they can do just a little bit slower. She has been a huge blessing in our lives and that of our family. I understand the fear of the unknown and not wanting a child with "special needs" but you should decide what you would do with the infomation the test would give you. If you would not terminate why do it? I have decided with this current pregnancy I will do the basic blood test and Ultrasound to prepare if need be but nothing more because I will love what ever child I am given. Good luck to you and I hope you have a healthy pregnancy and child

 

zay28 - September 18

Daisy, the most important thing in the live is respect other people decisions. Even if we are agree or not. Kaz had to take a decision very hard and important in her life and she did. She is very strong to share her story. The only thing we can do is understand and pray for her because I know it wasn’t and easy for her.

 

ibk8t - September 18

and to veggiegal.....not sure what you were trying to accomplish by responding to Kaz with your Happy ending DS child story, but I'm sure all you did was twist the knife in a fresh wound....try and keep these forums to information that will help and support, not make your look like mother of the year and others feel guilt.

 

veggiegal - September 18

ibk8t, I was telling my story like Heart had asked for. I would never intend on making her hurt or worry more or like you said "twist the knife in a fresh wound". She wanted to hear about other people in similar situations and that was me before I found out. I wanted to let her know that DS IS something that happens and that it can turn out to be better than you expect it to. I was just as afraid as she was and searched out what ever help and information I could get and the stories I heard from moms who did have children with DS were helpful to me. I think that Heart can take the story for her own use and hopefully see that there are worse things than DS. I would never intentionally try to hurt someone and I was never trying to make myself look like mother of the year (I am definitely not). I don't know why this seemed to strike such a cord but I was only trying to help! Heart, and all who read this I just want you to know that DS is not the end of the world and I am currently pregnant again and have the typical worries that all of the rest of you do but now I at least know about one birth defect/disability and know I could handle it and wanted to tell my story to you all so you know it is possible. Good luck to you all

 

ibk8t - September 19

it struck a chord with me because this is the same forum where daisyusa was calling Kaz a murderer for terminating a downs pregnancy, but I can see that specific post has been removed for it's poor taste.....so you may not have seen it.......but if you read through, you will see that it deviates from Heart's original questions into a crusade of sorts against Kaz and women making choices that others may not agree with....I have a very low tolerance for the holier than though crusaders that shoot their mouths off without knowing all the facts...., if you did not see that part of this thread, my apologies.

 

daisyusa - September 19

You need to get off your high horse and stop slamming people. If you can open your small mind you will see that I apologized to kaz. She knows how I feel and I know how she feels. Veggiegal chose to keep her baby and loves that baby unconditionally. She is proof that those tests don't show the severity of DS. Poor taste or not, what I wrote was the truth, harsh maybe, but the truth. Obviously you would kill your baby in a heartbeat if you heard the words, positive for DS. How sad. How awful to be blessed with the gift of life only to throw it in the trash. I'm sure I struck your cord again, but I don't care. You want to continue running my name in mudd, be my guest, I will continue to defend myself.

 

ibk8t - September 20

Sorry Daisy, you're the one on the horse....I didn't call anyone a murderer, you did.......don't make a__sumptions about how I would choose, that is personal and frankly none of your business... I'm only defending the right to make a choice, and the freedom to speak about it in special places like this forum without fear of being judged. I have no judgement to pa__s on anyone regardless of their choices.....I only judge you for your opinionated, narrow minded and hurtful comments....your apology to Kaz was hollow and phony, you still believe what you believe and probably think everyone that doesn't think like you is going to hell.....and frankly, I'm sick of your type...sickeningly sweet and fake on the outside, and seething with disgust for anyone thinks differently on the inside....kinda like your president....

 

daisyusa - September 20

There you go again with the small mind. I apologized for being rude and harsh, not how I felt. I'm not going to change how I feel and I know kaz wouldn't have changed her mind. You don't know me and you just need to move on. My heart on the inside is just as sweet as the outside, not a fake bone in my body. 10 commandments, remember, thou shall not kill. I'm not a perfect Christian, far from it, but I try follow my path. Don't ever compare me to the president. You see how you feel when you see your baby with a strong heartbeat only to have him taken from you a few weeks later. Only then can you know how I feel. You'll only ever agree with people who choose to abort a baby. This is an open forum, if you come here just for support, then you see with a blind eye and you won't get anywhere. Get over it girl!

 

ibk8t - September 21

There's nothing for me to get over Daisy....just letting you know how I feel about the kind of poison you spew....and no matter what you say, or how much sympathy you deserve for what you've been through, you'll never convince me that this is the place to call a woman, who's also been through hell, a murderer

 

daisyusa - September 21

Listen to yourself and read your words...a woman, who's also been through hell, she chose to put herself through hell, so don't ever compare someone like that, who willing put herself through "hell" because she chose to kill her baby. I didn't kill my baby. I'm not looking for sympathy. You see the difference? I'm done with you, you are a waste of my time.

 

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