For Interested Moms Info On DS

1 Replies
beauty3551 - November 30

Hi all!!! I\'m a frequent poster of a couple other babysites and just came across this one. I\'m not 35, however I DO have a son with down syndrome. He is 15mo old and was born when DH and I were 21. This post is just for those dealing with a higher risk of DS due to age, blood testing, or other testing. You may have gotten a risk of 1:400, or even 1:100, but I\'m writing to reassure you that this is a MINIMAL risk... meaning, it\'s not that bad. My risk for another baby with DS is 1:100, and hubby and I are fine with it. We\'re expecting baby boy #2 due Dec 25th, 2009 (anytime!) and genetically speaking he is healthy. To answer a common question, I did have an amnio but it wasn\'t to check for down\'s it was to check for a genetic skin condition I have a %50 to pass on. We didn\'t know before that about a higher risk. either the blood work was ok or they didn\'t perform it since the amnio was planned in my future. I would not take any of the experiences with our son back, not one.... and he spent alot of the time of his first 6mo in the hospital. He had many of the health complications that go along with DS initially, however he is healthy now, growing and learning and speeding ahead compared to then. He did have 2ASD and 1 VSD (holes in heart). he also had a PDA since he was a preemie born at 35w5d due to no fluid. He did inherit the skin disorder which made him more immunocompromised so when he had his open heart surgery at 10w old, he developed a severe bone infection and spent 3 months in the hospital. This was again, due to him having BOTH DS and EHK (Epidermolytic Hyperkeratosis, Google it but be aware those pics are of much more severe cases than ours) Good luck to all of you and just know that DS is NOT the worst thing that can happen. there are all sorts of other stuff i\'ve seen like ppl who were drug babies and born only to grow up absolutely non responsive, at the development level of a 2month old.

 

runnershirl - December 10

Thanks for this post...I'm presently pregnant and due to being 39 and the hcg levels were elevated (3x normal), my baby was given a 1:12 risk for downs syndrome. It worried me at first, and I have to say--everything will concern me until the day my baby is born (EDD 4/14), but I decided a couple things...1) I will get the baby intended for me (I'm doing everything possible to remain healthy so there is simply nothing more i can do; 2) my OB told me he had 3 patients last year who were 1:10 risk for DS and all the babies were born perfectly healthy; and 3) one of the most memorable girls trips I went on in in my single days was positively effected by my meeting and hanging out with a young man with DS...he was one of the sweetest, most pure, honest and loving individuals whom I ever met...and his memory will remain with me always. I did not opt for the amnio (although DH was hoping I would to be sure), but I decided that I will give my baby as much love as I have in me, despite what the outcome will be. Until then--fingers crossed and prayers that my baby will be healthy--as healthy as God would have her be. :)

 

ADD A COMMENT:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?