Today Is World Down Syndrome Day
6 Replies
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Today is World Down Syndrome day. Its amazing, I first started to learn about Down Syndrome back on sept 19/08 when my prenatal testing came back at 1/46 for DS. My first thought was pure fear of the unknown. I learned so much about it and prepared my self. As it turned out, she was born without DS, but I made many friends and learned alot and my perceptions were changed forever. Take a look at just some of the DS websites today. They all have info and wonderful slideshows of pics. For all you moms going through the prenatal testing with positve screenings, don't despair! xxoxox
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I was largely cured from my fear of DS after reading "The Memory Keeper's Daughter". There are people among us with hugest hearts, with acceptance, with kindness.
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Thank you for the encouragement and the info. I just got AFP results yesterday 1:110 for down syndrome = not good, high risk. I'm not believing it but I will accept whatever happens. I have little fear of raising a DS child but even greater fear of leaving someone with special needs behind when I die.
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Hi Perl. I know its really hard. I was at 1/46, but given your preeclampsia history, I would think its placenta related throwing your test score. Are you doing the amnio or are you going to just wait it out. I waited it out and made it through. I hung closely to my faith and just happened to be doing a beth moore bible study at the time called believing god. it was very timely. I'm here to chat, i knpow exactly how you feel. big hugs.
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In the Woods: thanks for the book recommendation and support. ****Blessedwith4: Wow, so you do know what I'm going through. Thanks again. It's funny that you mentioned Beth Moore. I'm in the middle of one of her studies "The Patriarchs" great lessons from the personalities of each one of them. I LOVE LOVE Beth Moore's studies. I've done a few of them. She is a great and powerful teacher. When I was considering the amnio I thought, what does that tell me about my faith if I feel I have to take a risk and have one just to get an answer and feel better about everything. Either God will make everything good or else He'll show me how to cope with my fears. I don't want the amnio. I'm not believing these numbers. I prayed with a friend over the phone yesterday and after that I've been feeling really good. Like everything will be alright. Sure, this is still on my mind and heart but I'll be okay no matter what. Thanks for being here.
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Hi Perl. Thats how I felt as well. We had just begun the "Believing God" study. So far we have done Daniel, Believing God, When Godly People do Ungoldly Things and we are starting Breaking Free next wednesday for the next 12 weeks. I love Beth. hang onto to Him. Know He's there. I pray for strength for you through this waiting. It's tough. Even if your child did indeed have DS, we know it'll be OK, however, like you I do firmly believe you are having a pefectly healthy baby. Don't let these tests steal your joy of this pregnancy. Like you I had so much on my plate, the issues of preeclampsia etc. It was aolt to handle, but after about the first 3 weeks of fretting, freaking out with worry, I just left it at tghe altar one Sunday and enjoyed the rest. The morning of my c-section I could feel the anxiety and then as they lifted her out and I looked to see her and see if I could see any signs of DS, I cold feel as if Jesus was right there with me, a total calm. he will give you that as well. xox
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Blessed: thanks again for the words of confidence and blessing. I'm believing and hoping for the best for my baby. I just wanted to tell you that Breaking Free was probably the first of the Beth Moore bible studies I've done and I remember it really forced me to examine myself in ways I had not done before. Like all her studies, it's a fantastic one--I know you will be blessed by going through that one.
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