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Thank you Julie for posting. I am into numbers as well but without the rea__surance of an amnio I have to put faith in someone else like God besides numbers. Glad you hear you have a healthy baby! As for me I have no news. I am just hoping the weeks will start going by faster. I am almost 28 weeks right now. I am wondering if my due date will change because the baby is measuring a week ahead right now. I am definitely not the next one to deliver so it may be you ohhmuffin! I'm not due until April 26.

I am being induced Feb 6th- 8 more days!!!! I am so at that miserable point right now. I just hope the next week goes by really fast. Gretchen

Good luck Gretchen!!!! I hope these last 8 days fly by for you and that you'll be back on here in 8.5 days (haha) to report back your great news!

Hi my name is Jennifer and I have been reading the posts for over a month. My husband and I found out our little girl has the "white spot" on her heart. I'm 28 years old and 29 weeks prego. Reading all of the posts has really given me a peace of mind. Some days I can go without thinking about it, but most days it's in the back of my mind and on other days I can't think about anything else! I had my quad screening and they gave me the numbers of 1 in 5,000, but since finding the spot my Dr said my odds were 1 in 1,750. I know these are VERY good odds that she will be okay, but I still can't help thinking I will be that "ONE"! My regular Dr and the specialist both have told me not to worry and reading all of the posts have really helped me, so thank you to all of you! Please keep my little girl in all of your prayers. I will be thinking of all of you that are getting ready to deliver. May God bless you and keep your little ones close!!! Love - Jenn

To all, glad the follow up doctor’s appointments are going well. Ohhhmuffin, Gretchen and 1moremom – I’m jealous you guys are getting close. Gretchen, you are really close!!! I wish I had a baby to hold sooner rather than later. To: Jen/repenshek I had my perinatologist appointment a week ago and my regular OB appointment yesterday. At the perinatologist, I had another Level II Ultrasound. CPC was gone. EIF was still there. I asked the tech about it (she was one I hadn’t seen before) and she said it wasn’t a big deal…that it would stretch out as the heart grows. Well, that wasn’t exactly what she said…it was a little more scientific but that’s the gist of it. Perinatologist could not have been less concerned about the CPC. It was tiny before and now gone. She said there’s a link b/t CPC and Trisomy 18 more than there is with Trisomy 21 (Down’s) but that it is weak and my OB said with Trisomy 18 there are a lot more things that pop up on ultrasound. Baby is measuring on track but on the small side. My 2 year old, who is not ‘chromosomally enhanced’ (love that phrase, saw it on a mom’s post on one of the Down’s boards), was 6 pounds full term so maybe I just grow small babies. Not fair b/c I am getting HUGE! My OB is wonderful. She’s been in practice since 1984 so she’s seen it all. She’s kind, patient and really tries to answer my questions. I tried to get her to join my worryfest again but she wasn’t having it. Her point is that you have to take everything as a whole and if everything as a whole is looking good with baby then things are probably just fine. I keep wanting her to give me new odds but she said she’s not comfortable doing that b/c no one really knows the validity of these soft markers and ultrasounds pick up a pea under the mattress nowadays. She just said less than 1%.Taking what you shared before (and thanks again for rekeying that information) I’d put my odds anywhere between 1/300 to 1/450. My 1st trimester screening (blood and NT scan) gave me 1/931 and I’m 36 so that was pretty good before soft markers were found. I had started to obsess about my baby’s femur…it wasn’t ‘soft marker’ short but it was a little bit shorter than the rest of him/her. My OB pulled my son’s records and he was a little more than 2 weeks behind femur-wise during a certain point in his growth…my point being I guess that some things will still cause you worry until you put them into perspective. Lastly, if you Google choroidplexuscyst, the first thing that pops up is a web site for parents whose babies had CPCs as well as a host of other markers. If you search on the site for CPC and EIF you can read numerous really comforting stories. Hope all is well with each of you. Fingers tired! Signing off…

Has been awhile since I've posted, but I've been reading everyone else and the news and support have been great...thank you! Thanks for letting me know how you've been, texasmom! We just had the f/u ultrasound and the CPC's were gone as well...even though it doesn't change the 'risk' numbers, it still is nice to know. EFI was still there. From reading everyone else's posts it sounds like all of the ultrasound tech's talk a lot and tell you what they have seen and what their knowlesge is. We didn't have that much at all. Not much talking, but she was rea__suring us about the growth- right on target, which is our main concern. Anyway, the doctor was even worse as far as being able to communicate well! Not more than a few words...CPC's are gone and EFI is still there risk is the same. We had to literally stop him from walking out of the room before we asked him more ?'s! I'm glad that was our last one as we were so nervous. So, no new news really. I'm just hopeful and keeping busy with our two boys who are presenting enough challenges to keep my mind preoccupied 24/7! Just waiting on that little girl! When did you say you are due? I'm May 16th. Do you have any other children? So glad to hear from you as I've been thinking of you! Take care all of you ladies!

Gretchen - omg only 8 days! Please come back and post your wonderful news! mylittleone- I know how you feel. I definitely have those days of feeling that I will be the "one". You should be due a few days before me. I am about 28 weeks prego but the little one is measuring 29 weeks right now. I hope you'll stick with us on this board until you hold your little one in your arms! texasmom and repenshek - I'm so glad the CPC's were gone! That seems to happen nearly all the time. I even read that some docs think they are a normal part of development. Repenshek - this is my first baby so I'm extra scared. Having to deal with the EIF is not how I envisioned my first pregnancy would go, but then again I though getting pregnant would be easy, lol.

Boothy and Lad or anyone that can answer... I have a question once the babies were born did they do any follow up test or did they notice right away everything was ok or what test do they do.

carlas28- My son had an eif found at 20 weeks and was born healthy in June 2008. I asked them to check right away for any sign of Downs. They checked him and said they felt nothing was there. I insisted for more and when the pediatrician on call came in the next morning he looked him over very closely for any of the Downs trait marks and did a bunch of measurements at which time he was able to tell me he did not have Downs. Take care, try and enjoy your pregnancy and God will bless you with a healthy baby.

kimp- thank you i had my son in nov via c-section and right away they told me he was fine and he was in the NICU for an infection due to my fever and they also said he looks fine and everything was ok I was just wondering what test they do when the baby is born someone on another board ask me and I don’t remember any big test they checked him and they know he was fine.

Hey everyone _ i think I'm having a bad week. I keep thinking about my child having DS because of the EIF. Four of my friends were all pregnant at the same time and the third just had her baby so I'm the lone preggers. All babies were healthy and normal. Now that I am the only one left to deliver I find myself getting more and more anxious about this EIF. I still have so many weeks to go. Not sure what to do here:(

Hi everyone, I'm new to the forum, and thank good I found it, I've been reading everything since 2007 I think... for the past two hours, and I finally decided to post. I'm 19 weeks, had my 18 week US last week and Dr discovered an echogenic intracardiac focus on my baby boy's heart. Everything else looked good. My first ultrasound / nuchal translucency looked good too. I had blood tests both at my Dr's office (AFT) 1:3250 Normal! and at the Perinatal medicine Place where I get my ultrasounds done, I had blood drawn at 11 weeks and 16 weeks and got results with my last week ultrasound as part of the integrated screeining 1:300. I don't know why the results are different from my doctors though, I'll ask tommorrow, I was too nervous to notice. I'm 25, so I don't know if the #'s are any good for my age, I feel as though they should be better, since I'm reading from women 35+ getting results of 1:5000 or 1:7000. Anyways, both my Dr and the Dr at the Perinatal Medicine Place said an Amnio was not medically recommended, we opted not to for now, I'm so scared though, I belive that it would give me piece of mind if results were good, but on the other hand I'm not ready to get a negative result either. It''s weird its only been a couple of days and sometimes I feel confident he has no DS and some days I feel like a wreak! I'm just glad I found all of you, and am looking forward to get to know you all and your cases better. I'm praying a lot, so all of you will be in my prayers!!!!!

Woops... My integrated screening at Perinatal Medicine Place was 1:1300 not 1:300 sorry....

steffie92 - All of us I think are the same. Some days suck the big one, other days are better and we couldn't be more positive. I've had a lot of positive days in the past couple of weeks; yesterday was rough. It can take the littlest thing to tip me off and for me to become pesimistic about my baby's outcome, but in the end, I have to push past my own negative thoughts, not only for myself and baby, but for my family as well. Our doctors keep rea__suring us all that it's going to be okay.....we just have to trust a little I guess. Just sucks that it's something out of our control! I think that's the hardest part for me! Eugenia - Welcome to the group! It sucks that you too are part of such a group, but as you've been reading, this seems to be so incredibly common, that a lot of women are worrying about nothing with our little wee-nuts! To everyone - Does everyone know what they are having? I'm not sure if I'm looking into this too much, but it seems like there are a lot more little boys who seem to have this than little girls. Anyone else noticing this, or is it just me?

Ohmuffin- Thanks Ohmuffin for your warm welcome! This is my first day and I already feel I couldn't do this without the girls at the forum! To all -I was just thinking if anyone thinks AFP 1/3250 and Triple Screen 1/1300 are good numbers for someone 25? I keep seeing numbers from others who much older and have better numbers than I? Also I just remembed freaking out at the beginning of my pregnancy, (got pregnant in Oct after a very early in June) aboout early HCG numbers, and at 4 weeks mine was 1789, when it should have been like 500 something. I researched it on the web, most websites had nothing on it related to DS, except a couple like Baby Center I think. I mentioned it to my DR early on, and he said not to worry, #'s would overlap. I mentioned this last week to the perinatalogist he said it had nothing to do with it. I know feel as though I knew from the beginning... is it my intuition or am I just so scared? Does anyone know anything about this? How were your HCG at 4 weeks?

oohmuffin - I know we have to trust but it is soo hard. The not knowing is killing me. The "what ifs" are killing me. Thinking that I'll be the "one" is killing me.. I have another u/s on Friday. Its just to check a fibroid but I'm hoping the tech can make me feel better (at least temporarily). I just had a major breakdown in the car on the way to the superbowl.:( Hopefully this week or after Friday will be better. Oh you posted another good question. I have no idea what I am having but I thought boy for a long time? So maybe you are right that more boys get this than girls? Eugenia - welcome hun! Sorry you are joining us though. To answer your question about the HCG. Mine was about 171 at 13DPO and I was freaking out because I thought it was too high. I think the website that mention that high HCG's may be related to DS often forget to say that it is s SUBUNIT OF HCG that they actually check for with bloodwork screenings and not the HCG numbers that we get in the beginning( I think). Even still I was still worried and I too wonder if finding the echogenic focus confirmed my intuition or if was I already scared to begin with because I read into HCG's too much? Either way this whole thing sucks and it has really ripped the joy out of pregnancy. I've really tried to be positive these last 7 weeks. I have my good and bad days. I even got some maternity shots done this weekend but I still felt a little sad and uncomfortable during the shoot. I really envy those women that are so joyful during pregnancy. Sometimes I wonder if I'll go onto have anymore because I don't want to go through something like this again. That's probably crazy talk though I guess.