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ANGELSWIM. God bless you and your family, just wait for baby to be born and see what happens or get a second opinion. I am so sorry that you have to go through this righ now near the end. I had my own scare today because my ultra sound also had some issues with the baby heart rate and they were going to do a delivery right away. It turned out okay but it makes you wonder about how many things can grow wrong. My Docter told me that nothing is guaranteed, even when baby is born there are so many things that may be wrong, I worry too and I know you must be thinking why me. I believe in God and prayer and I will say a prayer for you and your daughter. God bless

Angel~Never mind what went wrong from Sept. 27 u/s to now, but the last 5 until now? You must be having a hard time understanding, because I sure am. If your baby has been healthy all these months, how in the world could it suddenly develop skeletal dysplasia or whatever you called it? It seems impossible that all the sudden in your 9th month it develops this disease?? I wish you the best of luck on tomorrow's appt. and please let us know what he says. Just for the record, my sister knows someone who's baby was being born with short limbs etc, and was perfectly healthy, so sometimes the u/s, tech's, ob's or whoever can be wrong. Have faith sweety and again, good luck tomorrow. My prayers are with you. Also, don't worry about being a "downer", because this board is for support of all kinds good and bad.

well said Mel...

Dear Angel: I did some research w/my husband who happens to be doctor, on lethal forms of skeletal dysplasia, and what we found is that it is almost ALWAYS diagnosed in the second trimester. THere is an intricate ratio of femer length that must show up as being off and monitored for some months before a definitive diagnosis can be reached. There are many forms of SK....and most are not lethal. Perhaps you misunderstood your doctor, or he scared you by informing you that there ARE lethal forms of SK????? Because if your daugther DOES have the lethal form and you were not informed of the problem ealier (when you might be able to make some choices) and while I'm not a lawyer, there seems to be a case of serious medical negligence here. In any event, like others have been saying, the pieces just don't fit here. Still, for you to report to the group that your baby might not live after birth suggests that you really are scared, and I'm sorry for that.....but so much of this just doesn't make sense for a "medical" perspective.

happpygal-- That's what I can't understand really. He has on a service request form for a follow-up ultrasound level II because of a "possible Thanatophoric Dysplasia". I can't understand why it wasn't picked up earlier. Every single ultrasound up until NOW has been "everything looks great". No concerns at all about growth. You'd think that he would've caught this since every ultrasound they have measured growth and kept an eye on the heart. Anyways, I have a meeting with my OB today about the whole thing, and I am going to have her write me an order to get a second opinion at another hospital that I've got lined up.***Right now I'm going through an angry/denial phase of this. My dh is trying his best to keep me cheered up. He's been great. Thanks for the information Happpy and words of hope.********Mel...your words went straight to heart. Thank you.

Yeah, good, Angel, sounds like you are doing ALL the right things, and not an easy task when you must be numb for shock. I think many of us are there right with you....but hang tough right now, because there are a lot of unkowns and when doctors write "possible" ANYTHING, much of the time they are just trying to cover their b___ts....often at the expense of scaring the the pt. silly. So, I'm holding out a LOT of hope for your little girl right now...and I'm glad you were able to voice your concerns. Please let us know how it went, and yes.....asking myriad questions is very good, you might want to write them down before you go (that's what I have done in the past). Good luck today, and I'll keep you all in my thoughts....

Well November mommies, I just got a call from my Ob's office letting me know that I failed my 3-hr. GTT last Thursday, Oh well. I look at it this way. At least I did not get it early in my pregnancy like I did last time AND I only have 4 more weeks to go before my section, so it won't be miserable TOO long. I'm hoping we can control it with diet and exercise (which I do anyway), but if not and I need insulin then so be it. At least it would only be for a couple weeks anyway. I am waiting for the hospital to call me to set up an appt. with their nutritionist and then I see an Endocronologist? I think. Since I had it with my son 7 years ago, I knew there was a chance, but when I pa__sed my last one at 6 months, I really thought I wouldn't get it this time around, but at least it happened near the END of my pregnancy. I will update you when I have more to update. She is doing great and moving around like a nut in my belly. LOL. I thought movement usually decreases around this time(35w)? It must be the extra sugar she's been getting maybe? LOL. Angel, have you seen your ob yet?

Sorry about the GD Mel...But you sound like you are OK with it. Great att_tude!...I however have nothing but b___hes...LOL...I got my short term disability paperwork in the mail Saturday. It was approved through 10/30. No that is not a typo. It was approved through today...LOL I called and tore them a new b___thole this morning. Turns out they only approve from appt to appt. Sounds stupid to me but...so long as they don;t make me go back to work tomorrow I am OK with...LOL. I have been nesting like nobodies business. DH said I better hurry up and have "my baby" because he is getting tired of putting up with me...LOL. I thought I might have started labor last night, I felt a couple of contractions pretty close together...but here I am...nada...Just need to get through til friday...then anything can happen from there! Take care all. I'll fill you in on my dr appt tomorrow

Can things get any worse? Yes. I am completely flabergasted. According to my OB, the specialist is still looking over the ultrasounds, and she sounded completely clueless as to what is going on really. I don't think she's even talked with the specialist yet about all of this. I however gave her my own opinion, which she said she completely understood my concerns and would ask the specialist the same questions. She did however do the strep b test and wanted to test me for preeclampsia due to my blood pressure being higher than it has been since I've been pregnant. I refused to do another 24 hour pee-in-the-jug test because I already know why my blood pressure was up. So, I am still in the dark as to an answer, but hopefully by the end of this week I'll have a second opinion and at least know what is really going on. If the second opinion shows that it is in fact what they say it is, I am going to find a lawyer and get this settled. He had to have known about it between 16 and 22 weeks, so that means he's been keeping information from me back when I had the choice to end things rather than have my baby girl suffer at birth.

Angel...Your situation has me totally baffled. I think about your situation a lot and can not come up with any type explanation (well one that might make sense anyway...and I am pretty good at looking at things from more angles than exist!) I wish you well and hope you get some answers very soon. Maybe Perl can help you out finding an excellent atty in whatever specialty you need. (sorry Perl if it feels as if I am putting you on the spot) Any medical stuff I would be happy to help you out with if I can...if not I can ask one of the Docs I work with...

Angelswim: how frustrating that your specialist and your OB are dragging their feet on giving you some answers, but it's good to know that you're expecting a 2nd opinion soon by the end of the week. I not able to give legal advice on this forum but even if I could it would be all directed at California law because that's where I practice. All of my attorney contacts (those I know or have worked with personally) are in Northern California and they practice criminal, corporate and estate law but I may be able to point you in the direction of some referral sources depending on what jurisdiction/state you are in and a__suming you are in the USA. You'll need a good civil litigator who specializes in Tort Law. In California, and states with similar views, Tort reform laws have vastly limited what you can claim and get out of a medical malpractice (negligence) claim. You'll have to prove that your Dr failed to follow a standard of care, that a competent specialist or Dr (whichever applies) would have provided you with more complete information at an earlier date and that the information would have resulted in a different decision on your part. The tough part is determining whether your State would be sympathetic to your claim. In California this would be considered "wrongful birth" and our courts are not very sympathetic (even though it seems cruel and inhumane) but that's not to say that your state could or would decide otherwise. With more facts, I'm sure your attorney could also find some other claims to add to a lawsuit as well. ****But let's hope that your 2nd opinion and a closer look at the ultrasound shows that the specialist was WRONG and that your little girl is fine.

CHRISTA: Sorry to hear about your G.D. I do like your att_tud though. You managed to beat it this long so that is something to take pride in. There' not much time to go! ****MEL: disability time from apppointment to appointment sounds like a totally messed up and c___ppy system of red tape for paper pushers. Do you have re-apply for additional disability time after each appointment by doing more paperwork or what? I'm glad you got the disability time but it sounds like a ridiculous system when the request involves a pregnancy. Where are you getting this extra energy to nest? I have no energy. ****My itching has gotten much MUCH worse. No rash, no hives, just itch!!! I itch all day and all night every single day and it just got worse. I wake up scratching and want to just rub sandpaper all over my body. My OB said it's bile acid that's gotten into my bloodstream and I was sent to the lab for bloodwork today to check my acid levels. If they are too high I'll have to go to the hospital and stay connected to a fetal monitor for probably until my Nov 16 c-section. I've heard of some women being called in for immediate induction or c-section if levels are too high (because it can cause sudden heart failure in the baby). But the stupid part is that the lab results take an entire week to return from out of state! I have been given a heavy duty antihistamine to help with the itch and I'm hoping it will also put me to sleep so I can finally get a good night's rest.

Perl, looks like you crossed Mel and I...I am disabilty BS she is GD...lol all that scratching got you mixed up? or the antihistimine? Either way, Mel does have a great att_tude about it. Regarding my STD stuff, No...I do not need to reapply, I just need the Dr. to submit their notes.

Oops, I goofed up (ha ha) yes, blame it on the scratching and lack of sleep due to all the itching/scratching. Sorry Christa and Mel! Glad to hear you don't have to re-do your paperwork after each appointment Christa.

LOL@Christa & Perl. I saw that Perl addressed our problems to the wrong people, LOL. I figured her fingers were way ahead of her brain was all. LOL. ***Christa~Glad to hear you tore their b___thole and got it straightened out. At least you don't have to do it after every appointment. Also, where are you getting the ENERGY to NEST??!!! Are you kidding??!!! LOL. I have been so exhausted and I'm lucky I can do the normal things in the house like make beds, dishes, laundry, etc. ***Angel~I hope you get your answers by the end of this week like you hope to. I still think the doctor screwed up. This whole thing makes NO SENSE whatsoever and something so important as such, I can't believe they did not communicate this to your Ob to discuss at that appointment you had. I still have not had the Swab done yet. I'm thinking maybe because I'm having a section I will not need one since the baby does not pa__s through the birth ca___l? I mean I go back this Friday and I will be 35w/5d and nobody mentioned it at my last appointment. ***Perl~Your itching sounds just awful and I hope that it's nothing too serious that they need to induce you early. Have you gotten your blood results back yet? ***Christa let us know how your appointment goes today. ***Annishel, where are you????

Hey Mel, I read your last post about the Group B test. YOU STILL NEED IT!!!! I'm having a section done too BUT they still did it so I asked the nurse why and she said because if for some reason your water breaks the infections can get up to your baby. GET IT DONE just to be safe. She said it is rare but it does happen.