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I have noone deaf or even partially deaf in my family. I have never had to go through this before, nor do I know anyone who has went through it. I need someone to talk to in person who knows what I'm going through. I'm going to have to call the hearing test place and ask why they are making me wait so long for this test. Is anyone from the UK? How much do you think it will cost to go private? Amy p - do you use MSN, if you do add me my address is sick_of_changing_addresses@hotmail.com - anyone else can add me too if you want.
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I've just had a quick look on the net and hearing tests are only £25. I will look into that on Monday morning.
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Sorry was just going by my experience cause i thought my daughter was deaf too cause i got no reaction also. I noticed she could hear at around 2 months, maybe less, i hope it all goes fine and i am sorry for what is happening right now to you, wishing you the best
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My son got the hearing test when he was born and it was perfect! but when i braught him home,...i noticed a couple months after that he wasnt responding either. even clapping. but things changed around and he started responding. but i can tell you that i know hoe you felt cause i felt that way too. maybe from now till the 6weeks app. maybe things might change.
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| amy - November 26 |
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hello lesley..i am mommyofboys2@hotmail.com...feel free to mail me i am here for you if you have any questions just ask...i have been to hell and back with this and if i can make your experiences any better i would love to it is no easy task and it helps when you can talk to others...i also had no one in my family deaf and i knew no one..also i was 20 at the time and he was my first child so i had to learn it all on my own...BUT lets not jump to it...wait and see what the test says...at least if something is wrong he is young and that is the most important thing is getting it young....however, you know go with your gut and make sure you are satisfied with what they say...anyway when is his test? KEEP ME POSTED K...i am here for you..
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lesley do you have good insurance? i dont know how the UK works....if he does need special attention is the technology there?
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We have NHS over here, so things like hearing tests are free. Also because he is under 16 he would get it free anyways. There is a waiting list and I have no idea how long it is, so I have been looking into it and called up a private hospital today. For him to go private I need to get a referral letter from his doctor so I will make an appointment for him first thing monday morning. I have no idea about what technology they have, or what they do for babies with hearing problems. I've never had to deal with anything like this before. Amy p, how is your son now? Does he wear a hearing aid or anything? Is his speech normal?
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my son had surgery when he was 23 months to get his right ear implanted with a cochlear implant and then on Nov 17th he got his second implant in his left ear...he did not say mommy until he was 2 so it was bitter sweet....i dont want to say it is easy it is a process and very intense speech theraphy afterwards, but his speech is normal...he had hearing aids for the first 8 months and they did not do anything for him cause his loss was so significant...so we opted for the implants and he can hear VERY VERY well...you know there was a family from UK that flew to the US last year to get a CI (cochlear implant) so they may not have them there i dunno......but wait until that time comes.....but i am here if you have any questions ok :) good luck...
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lesley- no my son had no reaction to sound whatsoever for atleast the first few months. Nothing I did made him look or flinch or anything. At his two month check up the doctor seemed concerned but didn't do anything, which made me crazy with worry. At his four month check up, still nothing, and I tried desperately to get him to look towards noise, or flinch or something and he wouldn't. To make matters worse, my doctor said that even if he does flinch, does not mean he can hear, it may only mean he can see you and the movement is what startled him. Around five months or so he finally started to look towards sounds and woke up to loud noises. At his six month check up he finally responded to sound and made my doctor acknowlege he could hear. If I were you, I would still get the tests done. I wish I had the option then, I went through months and months of worry and frustration that could have easily been avoided if my doctor had referred us to a specialist. Again, I wish you and your baby the best of luck.
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Oh my gosh amy, I justed wanted to let you know that we are all here for you whenever you need to talk. Please, keep us updated.
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Waiting list is 13 weeks on the NHS. Thats quarter of a year. No way!!
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lesley is there anything else you can do? are there any other places to go? if your gut tells you something isnt right 3 months is a long time....i guess better then nothing though....the earliest baby implanted in the US is 4 months so time is not on your side...thats whats bad about it the longer they go without hearing the harder it is for them to catch uip...GOOD LUCK....keep us posted k..and thank you ashley!!!!
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hey ashley are you the one thats in nursing school? i posted a reply to you somewhere else about going through clinicals with small children.
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Hey amy p, I have him at the doctors tomorrow for a referral to go private. I called the NHS hospital up first to see how long the waiting list was, see if it was worth going private. I am hoping he can have a test before christmas. It is really getting me down and I don't want it hanging over my head over christmas. Hopefully I will have it done within the next 2 weeks. It means that neither me or John can get christmas presents but I don't care at all. I would rather have my son healthy and well.
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lesley i really feel for you, please keep me posted okay..and i know about doing without for the sake of your child that is all my husband and i have been doing since we found out about our son...but it is worth it to give them what they need...GOOD LUCK...i am here if you need to talk k :)
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