SO FRUSTRATED Please Help Beccah

47 Replies
Lisa*9 - November 7

Have you heard of the ANGEL CARE MONITOR for baby's with breathing problems. It is suppose to pick up a baby not breathing at home. Something to think about too.

 

Julie - November 7

I know they didn't want him to go home until his actual due date. Since he was born in Aug. he didn't get home until Nov. He did have heart surgery and I just think they wanted to monitor him closely. Now he doesn't have any problems and is walking and starting to talk.

 

Narcissus - November 7

Beccah, do you have plans to have a celebration when you bring him home?

 

Beccah - November 7

Lisa, no, I have never heard of that. Who do I ask about it? The people at the hospital? Narcissus, I'm not sure about a celebration. I didn't have a baby shower, and it kind of upsetted me as this is my first baby, and I felt like no one cared about me enough to be happy for me and throw me a shower, but that's probably the post partum depression talking. LOL. Julie, If Bradyn had had major surgery, then I wouldn't even be thinking about taking him home AMA. When I called to see how he was doing today, they said that he had a brady around 9 this morning, but that was "probably because he was straining to burp or pa__s gas". See why this is frustrating? He's always going to hold his breath to burp and stuff, he's never going to go 7 days without holding his breath to burp!

 

Lisa*9. - November 7

http://www.happynursery ....link to angelcare baby monitor

 

Lisa*9 - November 7

Should be able to buy it at toys r us or some other baby department in the us Sorry I can't help I live in canada. I am sure you can phone around to find a store near you . Maybe the website has a number you can call to find out where you can buy one.

 

Feline - November 7

My baby wasn't a premie so I may be way off, but my baby was in NICU and I felt that they were keeping it too long and that I could do everything they were doing. So I checked him out early. In my case there was really no reason for an 8 1/2 pound baby to stay in NICU for "observation". His crying was upsetting the other babies anyway. You can check your baby out early but you have to sign all of these release forms to release the hospital from liability. They tried to intimidate me, but I could not be swayed. I knew it was best for my baby to be home with me, besides I wanted to b___stfeed and they started him on a bottle without my consent because it was more convenient for them. I think it turned out to be detrimental in that baby preferred the bottle by the time I took him home. That's just my story, you do what you believe is best. I suggest getting a second opinion too.

 

Beccah - November 7

Thanks Lisa. I'll look into that if they don't let me bring a heart monitor home. Feline, thanks for rea__suring me. I truely believe that mothers know what's best for their child. I am definately getting a second opinion. And a third as a matter of fact. I have so far talked to one nurse in town who agrees with me, and she's going to talk to her friend at the NICU where Bradyn's at (Tomorrow). THEN I'm going to talk to the nurse pract. (Wed) at the NICU before I bring it up to the doctor (Wed or Fri). A friend of mine has 3 kids w/1 on the way and she said that I have to make it clear that I will do WHATEVER it takes to have him home with me (monitoring his breathing/heartrate, not leaving the house for 6 weeks, whatever.) I think it's too late for me to b___stfeed. I'm trying trying to keep my milk up, but with this stress, I think It may be too late. Did you guys want me to keep you updated on what happens?

 

YES - November 7

YES YES AND YES shall I say YES one more time for everyone!!!! GET THE HINT thanks from all of us whomever we are.

 

chelsey - November 8

Absolutely, Beccah! Do keep us posted on what happens! Good luck!!!!

 

Jenn... - November 8

Bring your baby home!! You have to stand up to them sometimes. Many hospitals are in business to make money, so they aren't always pushing to get patients home. Blake was in the NICU when he was born, I felt like the hospital staff was minupulating the situation and keeping him in there longer than he needed to be with more medication that what he needed. It took my husband standing up to them and telling them to release him to my room for them to say he was healthy and well. You sound educated on what is going on, you can take care of your baby! Let them know it is time for him to be released! GOOD LUCK =)

 

Beccah - November 8

BABY'S COMIN' HOME! YAY! So, I go to the hospital today and we ask to speak to his doctor. We explain to her that we really need our son at home, and we'll be willing to do ANYTHING and EVERYTHING it takes to take him home (I didn't even have to go as far as threatening to yank him out). She had obviously been thinking about this because we were constantly asking when he was coming home. She said that she wants to go ahead and see how he improves until Friday and she said that she'll have a heart monitor ordered for Monday, in case he doesn't. So either way we get to have our son home NEXT WEEK! I'm so excited! That makes it 8 weeks in the NICU. Today, when I was holding him, I put my face next to his cheek and told him that he was coming home with his mommy, just saying this made me cry! I am so happy, thanks SO MUCH for giving me the support to do this. I am the kind of person who would have quietly waited until someone told me otherwise, but you guys gave me the courage to go out and find someone to help me, and ultimately take my son home sooner. I LOVE THIS SITE! :-)

 

Beccah - November 13

Ugh.. this never seems to end. I wish I could edit my last post. Anyway, I was at the hospital on Fri and Bradyn's doctor came up to me and said that that they weren't going to send him home. I started to cry and asked why not. He now says that my baby has got bad reflux and can't go home until it improves. He also said that that's why he's having so many bradys. So, now if he goes 5 days without a brady, he can come home. Well, as you can guess, I said that I am willing to do whatever it takes to bring him home, even if it means just taking him home, and can you believe (I'm sure Chelsey can) that he said that he would get child protective services to take my baby away! This is the second time that someone has told me that I will be able to take my boy home within a few day period and then taken it back. I'm so tired of getting my emotions jerked around. If they had just said that the reason why he couldn't come home was because of the reflux, and not the bradys, I wouldn't have gotten so worked up. I work at a nursery and have watched babies with reflux before, so I didnt know how serious it was for preemies. Well, that's what's happening so far, I just thought I'd let ya'll know. :-(

 

Amaya's mommy aka Stephanie - November 13

Is there anyway you can get a second opinion. Maybe talk to another pediatrician in the hospital? You could also call a lawyer and see what your choices are. Maybe he could be sent to a hospital closer to where you live? I am so sorry you are having to go through this.

 

TC - November 14

Beccah Honey say strong for your little one. I read your Nov. 8 posting and starting to have tears of joy and then scrolled down on Nov. 13 and cried out of anger. It took me on an emotional roller coaster so I could only imagine what you and your husband must be going through. Don't let them take away your "mother rights" and keep on staying informed. I don't know what your faith is but I will be praying for you. Take care and please keep us posted.

 

Lisa*9 - November 14

Life sucks I remember my Mom telling me I was in the hospital for three months hang in there. Hope all the problems with your son get better fast so he can come home. How is your milk supply going or is it gone.

 

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