Choroid Plexus Cyst

306 Replies
Carrie - July 19

Hi Phillipp, Thank you for posting the link to your research. I did read through it and found it quite helpful. I have a question...I noticed that you didn't list Echogenic intracardiac focus as a "soft marker". Is that because it isn't a__sociated with T18? Is EIF a__sociated with T21? thank you!

 

Megan - July 19

Most literature does list echogenic foci in the heart as a soft marker for T21. I don't know about Phillip's particular literature, but I thought I'd share what we quote at our prenatal centers.

 

Monika - July 19

Carrie- If you look back at April 27th, I was in the same boat as you. I had bilateral cysts and a bright spot on his heart. I had the amnio and everything was fine. My last ultrasound showed that the cysts were dissolved and the bright spot was too small to detect on u/s. 33 weeks and counting- now I am decorating the nursery and collecting things that we'll need. Hope this helps

 

Angela - July 21

Sorry for catching up so late. I had another ultrasound with the specialist my OB referred. It's only a week after my 20 weeks ultrasound. And we are glad to know that there are no cyst, there was just brain muttling - natural brain development state. We are so relieved now. I suggest everybody else do another ultrasound as well, you may find out it's not even cyst. Good luck to everybody!

 

Megan - July 21

I'm glad things turned out very well for you. An extensive ultrasoun can always be helpful to confirm whether the finding is truly a cyst or not. Keep in mind however that the majority of choroid plexus cysts disappear later in pregnancy. Unfortunately if they disappear the risk is not changed.

 

Amy M - July 27

Just wondering if any of the women on here as had there babies yet and how everything is. It would be nice if they check in and let us no how everything went so we can look forward to having ours.

 

Phillip - July 28

Hi in reply to question about my intracardiac focus, it is not in my thesis as it was an unknown quant_ty back in the 90's when I wrote about the CPC stuff. These days, I think it is it is considered only a VERY soft marker for T21. It was in danger of becoming the next CPC, if you know what I mean - people panicking for no strong scientifically justifiable reason.

 

Laurie - July 30

Amy, in response to your question about deliverys....I wrote when I was 21 weeks along and am now 31 weeks. Baby is measuring large (and cute according to the sono!!!) and we're hanging in there trusting that God is in control and will be with us either way. I'm expecting to be able to post the final outcome in 7 weeks or so (I've had my last few pregnancies at 38 weeks and with this hot Summer am setting my hopes on only 7 more weeks to go!!) All of you remain in my prayers. Hang in there and know that others care, too.

 

Carrie - August 2

Hi Everyone, Thank you for your replies to my post. We got our amnio results back last week and the baby has normal chormosomes! We are so relieved and thankful. Monika, I did see your earlier posts and your good news helped me to have less worry during the long wait. It's a little more scary when they tell you there two markers, huh? Good luck and God bless to everyone who's waiting. From everything I've learned, the chances your babies are healthy are very, very good!!

 

Cindy - August 2

Whe the baby was 21 weeks, the doc found two cysts on the both sides of my baby's brain. I was so worried, but nothing I could do. Last Friday, I took the second Ultra Sound and these two cysts were disappeared. I understand your feeling. Just hope for the best.

 

Lacey - August 3

Yesterday i had gone to my OB app. and was just expecting to find out what i was going to be having and see my beautiful baby moving around. But to my awful suprise the doctor told me that there was some fluid in the kidneys and that there was a CPC in the brain. I've been worried, the doctor has yet to tell me anything otherwise other than not to worry and that she was not saying that i was going to definantly have an abnormal baby. But being only 21 yrs old and already having a beautiful healthy baby turning two next week has made me very nervous. I cry a lot. And the more information i read goes back on each other that it seems just having a CPC most likely it will go away but having two markers may mean DS and im scared. But it seems that most babys with CPCs and fluid in the kidneys usually tends to me a boy... so even though i didnt find out the s_x im leaning even more to think that we're going to be having a boy. But my friends, family, and my husband are worried and all try to keep positive but for me its just so hard, and all these tests just make me even more nervous. I might be having a level 2 screening done, and now im just waiting for my lab test for FBR and cystic fibrosis to come back. I just go back and forth thinking my baby will be fine and then lean to think that my baby will be abnormal. I am however glad to see that this is more of a common thing even though it seems to be such an awful thing to be feeling when we should just be thinking happy thoughts. And to be honest doctors never talk about any of this until this comes up in an ultrasound and to be honest i think if its a common thing they should be talking a lot more about it then throwing pamphlets at us when they can.

 

Megan - August 3

I think part of the problem is that there are so many possibilities of things to see prenatally that it would be impossible for doctors to talk about them all (let alone it would really freak every pregnant woman out). I am sorry this is such an anxious time for you right now, but think on the bright side if you can -even with two "markers" for Down syndroe (of which CPC's is typically not considered one) that does not mean your baby has Down syndrome. The majority of babies with those same markers would not have down syndrome. An extensive (or level II) ultrasound can look for other findings that aren't typically looked for in an OB's office. Of course none of these screening options can tell you for sure. The only way to do that would be an amniocentesis. Keep in mind however, that an amnio has a miscarriage risk of 1/300. It all depends on how anxious you are.

 

sade - August 4

hi to everyone i am 18 weeks pregnant and had a ultrasound they told me that they seen a cyst on each side of my babies brain i was so scared i cried all day and night i thought it was the end of the world every body was telling me to pray and put it in the hands of the lord i did research and i seen many other articles of the same thing and they were saying that they would go away i am schedule for another ultrasound next week i hope that everything is ok i am so scared and this my first baby i dont know what to expect if anyone has had the same problem and it has came out that the cyst have dissolved and had a healthy baby please keep me in your prayers i would feel much better to know that it is really nothing to worry about my email address is candygirl71103@aol.com please let me know something thanks

 

Megan - August 5

More than likely your baby will be just fine. This cysts usually do disappear, but that actually doesn't change the risks. If CPC's were the only thing found, keep in mind your risks for trisomy 18 (often a__sociated with CPCs) is still less than 1% (meaning there is a 99% chance the baby doesn't have trisomy 18).

 

Phillip - August 5

This is a great site for CPC discussion as well: http://choroidplexuscyst.org/

 

Amy - August 6

Hello ladies!! Just to update you all....I had originally posted many months ago that my baby had cpc's found during our first ultrasound. Well, I just brought a beautiful baby girl home from the hospital....absolutely perfect!! I have yet to hear of anyone whose cpc's turned out to mean anything. Hang in there.....in a while you all too will have your beautiful babies in your arms!!

 

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