Anyone Have A Baby With TEF Wanna Chat

2 Replies
ezwaggy - April 4

My daughter was born in November with TEF (Tracheoesophageal Fistula). She's doing great so far! But I'd love to chat with other parents of TEF kids if you're out there.

 

mommygabgab - April 27

hello i also have a son born with TEF/EA. i really feel sad about it. how about you? how did you feel? he is low on weight . my son is already 1 year old and weight only 7 kilos! imagine that :( im trying to feed him to gain weight.

 

ezwaggy - May 1

It was horrible to find out my daughter needed surgery at one day old. Then she was in the hospital for 7 weeks which was the hardest time of my life. She's gaining really well now though - she eats constantly. She weighs almost 14 lbs now at 5 1/2 months old. How did your son's surgery go? Were there any other complications? I'm not sure what the EA stands for. I'm scared about when we start her on solids though b/c her esophogus may not have much mobility - we won't know until we try.

 

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