Very High Risk Downs And Terrified
4 Replies
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Hi there,
I have never posted here before and I hope I'm posting this in the right forum. I got the results of the blood tests for downs etc on Tuesday this week and it was bad news. I have a 1 in 13 risk of having a baby with downs. I have spent the time since then basically terrifed and in tears. I have felt since the beginnig of this pregnancy that something wasnt quite right but as pregnancy is a time of worry anyway, I just thought that was normal. I have a healthy 2 1/2 year old already and didnt get tested with her. I'm 36 years old.
We have decided to have an amnio which is booked for Monday next week. I am so scared, of the procedure, of the risks and of the outcome. I have this really ominous feeling that we are going to be told the worst. I'm so frightened but I need to know. There is no way I could go trhough the rest of my pregnancy feeling so scared. If my result was better maybe but 1 in 13 seems so high. I keep thinking if I was older there would be more chance that it was afalse positive.
Has anyone had an amnio and gone on to have a healthy baby? I'm scared of premature labour and am already expecting another complication later on (Obstetric cholestasis) which I had in my last pregnancy. That increases risk of premature labour too.
Anyway, I'd be grateful to hear from those who've been in a similar position. Everything I've read so far has been people with much lower risks than me (despite being high risk still - e.g. 1in 60, 1 in 80 etc.) But 1 in 13 is so high.
Thanks Cherry
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Cherry, I went through a similar experience, except my test came back one in nine chance of having DS. It was frightening to say the least, I cried every day and was very scared. To top it off, this was a week before Christmas, I had an amnio on December 22, there is a 'quick' test to get the results of DS within two-three days. Mine came back negative, our baby girl was born in June and she's totally healthy.
My husband and I found it helpful to speak to a counselor before the amnio appointment, this really helped me relax and focus. Good luck, I understand your pain.
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Hi Cherrybug
I got pregnant at 37 with my son and my barts test came back 1/3. I was petrified and went for an amnio which came back clear. However, right from the start of the pregnancy due to my dating scan the hospital put me two weeks ahead and I knew my exact date of concception as I was charting my temps but the hospital wouldn't accept that. My first baby was 9lb 8oz and my family history was all big babies so I told them that but they said that at the dating scan the fetus' are all the same size whether they are going to be a big baby or not! Anyway, whilst awaiting my amnio results I read that if you had the barts test too soon it could come back with a negative result and I am convinced that that is what happened to me. My son was born perfectly at 10lb 13oz and to this day I am convinced that if they had done the test two weeks later then I wouldn't have been put through all that stress and worry. I am now six weeks pregnant with my third child and am adamant that I will not allow them to do the barts test until I know that it is the relevant time. (PS my son was born the day before I said he was due and the midwife told me that there was no way my baby was two weeks overdue when he arrived!)
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We were told that our baby would be 1/11 chance for downs, and like the other poster, our baby was large 11.3 oz, and perfectly healthy. We worried too, but even my dr. told me that those tests aren't always accurate, but are done because we are older (I was 38) and they also look for other more concerning medical problems.
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I am 39 and my husband and I are in the process of trying to get pregnant. I am so worried about complications because of my age. Downs is a huge concern of mine because of my age. This will be my second child if we get pregnant. My other child is 11 so it has been several years since I've had a baby. My husband is a few years younger than I and already has 2 other children from a previous marriage. All of our children are healthy children.
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