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Hello all. I first want you to all pray for my friend Amber and her family especially her baby Kaidance. Kaidance is a very special baby that has Anderson disease also known as Glycogen-storage disease type IV (GSD IV). She is only 4 months old. She will need a liver transplant by 6 months old. She has low muscle tone and is not developing mentally the way she should be. This is not the first time Amber has gone through this. Her first baby, Keagan, GSD IV. They didnt find out until Keag was about a year old and he had his transplant at 18 months. It was a long battle with him never getting off the respirator. He died when he was 21 months old. So in that time Amber lost a baby, she had a 5 month old when they left to go for Keags transplant so she missed out on a few months of Kiley Jane's (her second baby). She has had to plan a funeral for a baby. That would have to be the hardest thing ever to deal with. She now has two beautiful girls, Kiley Jane and Kaidance. Kiley Jane is in perfect health. She has nothing wrong with her liver or anything else at all. Kaidy will be going for her transplant in the next two months. She will once again have to leave Kiley with her grandmother so she can be with her baby. Please pray for my friend and her family. I know that her baby Keagan will watch over Kaidy but pray that he will also watch over his family.
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