Choroid Plexus Cyst

306 Replies
numba1cutie6t9 - August 14

we did do the test. Theres a very high chance of gettting a false positive tho. But either way Id be really worried so i decided to get it. Luckily ours came back good. I know its very hard not to worry..but honestly these things just got away 99 percent of the time. If theres no other problems ull really be okay. There are people even walking around today with CPC still...and theyre just fine. Just because they find them doesnt mean something will be wrong with ur baby. Good luck with the next scan. Im sure it will give u good news! :-)

 

FirstTimeMom - August 14

Thanks. I hope everything will be ok. I am calling my doctors office tomorrow for the results of the blood test. I really must tell you, knowing that someone else out there experienced what I am feeling right now really makes me feel that I am not alone. Knowing that your child is healthy makes my heart feel a little better. Thank You.

 

Emerson - August 18

My daughter, Irene was born 7 weeks ago and she is perfect. The worries about the cysts and the echo. focus on the heart pretty much ruined my pregnancy.. Oh.. by the way, it was my ultrasound somewhere between 24-28 weeks was when I found out the the cysts were gone. The echo. focus on the heart WAS still there, but they say that all of my babies could have had it and a lot do and it goes away after birth. The ultrasound technology is picking up every little thing, that normally is not considered to be dangerous. I know that it's hard to feel at ease, and you probably won't until you hold your little bundle, but rest asure that if there are no other markers that are significant enough for Dr.s to worry, your baby will be wonderful. Good luck to you..

 

jeankins - August 22

Hi. My baby girl was diagnosed through u/s and amnio at 22 weeks. She died at 26 weeks. I'm so sorry you had to learn about T18, no one should. CPC's are quite common though, less than 1% of babies with them end up having T18 or any other chromosomal abnormalities. If you want to learn more, log onto trisomy18support.org, it's full of people going through ths horrible situation, you'll get some good advice for people who know your pain right now. Wishing you the very best and praying that your baby is OK. ~Jean

 

sandramirisa - August 27

my babygirl was also diagnosed with 2 choroid plexus cysts on august 23. i went in the next day for a level 2 ultrasound and the dr. told me that there were no other markers present. he basically told me and my boyfriend not to worry. my boyfriend is taking it well but deep inside i still worry, and i guess i probably will until our next u/s in 8 weeks. this site has given me a lot of support and i am a lot more calm then i was a couple days ago. i have faith that everything is going to turn out fine with our babygirl. it just feels like 8 weeks is a lifetime away!

 

FirstTimeMom - August 29

Hi. Thank you everyone for your support. I am going back for my second ultrasound on Thursday. I am trying to stay calm. I found a great website if anyone is interested in: ChoroidPlexusCyst.org. What a crazy ride this has been. All I want is a healthy baby. I will keep you posted after my next ultrasound. I hope the cyst disappeared and good luck to everyone who is feeling scared. I promise you are not alone in this. We have each other.

 

mnl - September 16

i dont have an answer for this but i am in the same situation and im scared to death.....im so attached to the baby at 16 weeks and im only 21..i already love this baby..im scared...she has a cyst on one of the sides of her brain that the doctor said should of been gone already..and i was about to get the amnio but the twho membranes in my placenta have not fused together yet... please help me,....i want to feel rea__sured...im so scared and cant sleep.

 

numba1cutie6t9 - September 16

DONT get the amnio. THank god u coulndt do it. CPC dont uusally go away till 24-28 weeks. IT WILL Go away. Really.

 

Emerson - September 16

To mnl- my daughter had multiple cysts and they didn't go away until I had my 26 week ultrasound... She's here with us, 11 weeks old, happy and healthy. It will get better, I can a__sure you.. :)

 

rebeca - September 16

Hi Marla, It easy to tell you don't worry about the CPC but it's your baby they are talking about but let me tell you that I have 11week baby boy and also is my second child and he have the CPC bilateral(in both side) and thank God he is so healthy, he don't have anything at all. So try to be calm and relax because the CPC is really going away. Rebeca

 

mnl - September 18

thanx numbaonecutie6+9....i pray that it will go away. it was just so horrible how the doctor kept telling me that it should have been gone by now and she highly recommends the amnio....im glad i didn't get it..i almost did though......i appreciate the response.....it helps bring smiles and moree hope.....!

 

mnl - September 18

thanx also emmerson..really appreciate it......god bless you all so very much....

 

numba1cutie6t9 - September 18

aslong as theyres no other abnormalities in ur ultrasound eveyrthings fine and i really highly suggest geting a new dr. Have u had the blood test done? It can tell u if the baby does have problems. Theres a really high false positive rate tho. My sons had 8 cpc.4 on both sides..and they were quite large...Hes 4 months old now..and perfect.

 

mnl - September 19

thanx...i had a repeat afp..the results should be in soon..i'll keep you posted..thank you so much!

 

kellyah - September 20

Trysomey 18 I had a level ll US Monday at 20 week's and 6 day's pregnant. I had this because earlier in my pregnancy at 13 week's I had heavy bleeding which was attributed to placenta previa. So it was my normal US for anatomy but a level ll with the perinatoligist to make sure there was no more placenta previa. This is our third child and with both my previous pregnancy's I chose not to have the AFP screen because the high risk of getting a false positive. With this preg. I chose not to have that test again. Today during USwe found that the placenta is where it belongs and that the baby is in excellent shape and is measuring exactly to my date's! The perinatoligist asked if I had the AFP done and I told her no and she said ok then about 5 minutes later she say's everything look's wonderful and the baby look's perfectly healthy, but...... There is one soft marker. It turns out there is something in the baby's head that is a small fluid area which they see on most babies and are gone within a week or two due to the brain still growing and filling in. But..... It could be a sign of Trysomey 18??? Which is the most severe form of Down's Syndrome and babies do not survive with this. She went on to say well you'll be 34 when you deliver so your odds of genetic abnormalities are not as high. She said you can have an amnio but you have to decide if you want to risk the possible miscarriage of a perfectly healthy normal baby! Which no of course I dont that is why I wouldnt get the AFP test done with all my preg. She said this several times during the appointment. She also said that she consider's this to be a very annoying marker because perfectly healthy normal babies can have it too. She said babies with T-18 have other markers too like heart defect's abnormal hand's measuring small for dates very small possibly bent thigh bones and kidney abnormalities and a few other things. None of which my baby has. She said even though it is late and it wont be as accurate I could still have the AFP test. Which I could still have a false positive and if we decided on the amnio still be risking a healthy normal baby. I spoke with my regular OB and he basically said the same things he also said if you could be in my shoe's a week or two you would see this "marker" quite often and the babies are healthy and normal. He said it was 100 % my choice if I wanted the AFP test or not but it is late for it and I would have to get it done now. I actually stopped at his office for the script thinking ok fine I'll do it where he rea__sured me dont worry everything will be fine. I actually stopped at the lab on my way home. The lab is supposed to close at 4 I got there at 3:28 I walked to the door and it was locked with a little note by it that said closing at 3:30!! Well, I took that as a sign and ran for the car. both Dr.s voices ringing in my head saying it is a perfectly healthy normal baby with a beautiful heart and measuring 100% perfect for my date's with normal kidneys normal bowel Normal EVERYTHING!! Except this one STUPID marker!!! Which is most likely nothing. And do I want to risk a normal healthy baby to amnio? I am sitting here now feeling this beautiful baby inside me kicking and squirming all around and thinking truly in my heart of heart's that there is nothing wrong. My DH is against having the test (but he would stand by me if I decided to have it) Two of my very good friends both said if it was them they wouldnt have it. My mom (who I hate laying this on her right now) cried and said please dont worry and dont dwell on what could go wrong. I just feel ready to snap and dont know how much more I can take I found out I was pregnant when my dad was waging his final battle with cancer and it made him so happy to know that he was having another very unexpected grandchild. He pa__sed on July 27th and will never meet his last grandchild but before he died he told my me my DH and my mom that he was 1000 % positive that this was a baby girl that he had seen her! Well the Dr said today much to my joy and complete surprise that it is a girl!! I guess I am just venting because I have decided not to have the AFP, but if there is anyone out there with any info advice or maybe have experienced something similar please let me know.Also please excuse the length of this post and my terrible grammer I have been crying pretty much the entire time. Thanks guy's. __________________

 

mnl - September 20

hi kellyah...wow..i have the same story as you do..my baby at 16 weeks has a cyst on te brain..docs kept saying trisomy 18, soft marker, down syndrome..yada, yada, yada and scared the hell out of me....i kept crying and crying..i just lost my mon july 15 who also was battling cancer and she too aslo got to kno before she pa__sed away that she was going to have her first grandchild......i really miss her and wish she were with me right now...i do have an ultrasound tomorrow and im scared to see any outcomes.....this website has really helped me to feel better about the cyst.....i will be 17weeks and some days tomorrow..i keep praying to god, the virgin mary, and my mom to watch over my baby and hope that it will be healthy and normal....praying really has truely helped me.....and my friends and family...esp. my husband..btw..the doc also thinks im having a girl....so just to make you feel better..your definitely not alone......godbless you and your unborn baby..

 

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