Choroid Plexus Cyst

306 Replies
shawn - May 9

I am 33 and was told there was a cyst. They think it's a girl. The doctor told me it was the part of the brain that makes the fluid for the spin and that it was larger than ones they've seen before. I go in again in 4 weeks. I think this web site is really helpful. It makes me feel much better to know that it usually resolves. I am not going to have the amnio because I believe it is a risk.

 

Kymber - May 11

I lost a baby less than a year ago at 18 wks. I had several complications following the delivery and they were concerned about fertility ect. We were finally told we could start trying to have another baby the beginnig of December. Miraculously we were pregnant again by the end of December. I am now 20 weeks along. A few weeks ago we were told about the CPC's. There wer five small bilateral cysts. I was reasured by my husband, who is doing a surgical residency as well as the OB doctors that the chances of trisomy 18 were very slight. Yesterday I went in for the second ultrasound and they were unable to rule out any heart problems. In addition, the baby was not co-operating did not want to move his feel off of the side of the uterine wall. Due to their position they could not see him un-flex his foot and they are concerned about the possibility of rocker bottom feet. They have scheduled me for an ecocardiograhm in two weeks. They also suggested an amnio. However, the placenta is also lying over the cervix, which means if there were complications from the amnio it could put both my baby and myself in serious risk. If this baby does have trisomy I would still carry him to term and spend as much time I can with him. However, having this dark cloud hanging over my head for the remainder of the pregnancy seems overwhelming. I don't know what to do. Any suggestions?

 

AmyC. - May 12

I am 20 weeks pregnant and found out today that my baby also has a choroid plexus cyst. Like most of you I was told not to worry about it, but how can you not?! I just wanted to say that I'm glad to know that I'm not the only one going through this and that so many outcomes have been happy. This is my husbands and mine first baby, and you ladies have helped put my mind at ease (somewhat) until my next ultrasound in 4 weeks. Thanks again.

 

Monika - May 12

Hey y'all! My amnio results came back negative for any birth defects! Yeah!! I wonder if the cysts have gone away? I have a Prenatal EKG to look at the heart in two weeks- but I am no longer worried. I feel like I can handle anything now that we know there's nothing HUGE to worry about. I wish this feeling for everyone. It's kind of the man that complained of a headache . . . then someone punched him in the the face and the headache was no longer worth complaining about. You know?

 

tina - May 12

Hello everyone, I had a positive screen, a high risk of trisomy 18 .. 1/320 after one months i had my ultrasound which showed that my baby has choroid plexus cysts. My doctor recommended me to do the amnio. i'm lost, what should i do plz i need your help?

 

Tina - May 14

My Amnio went really well. I am relieved that I did it. I now am no longer worried. I have heard several bad stories from other women on here about how difficult the amnio went (not enough fluid, having to take multiple tests, miscarriage). If your odds for miscarrying out weigh the odds for the choromosome disorder- then don't risk it. If your odds for Trisomy 18- or 21, are higher than the risks involved with amnio - then I would say GO FOR IT. I am happy that I did. If the results had been bad, I would have known what to prepare myself and my family for . . .hope this helps

 

Liz - May 14

Mandy, just so you know, yes it really was 1/16 chance on the triple screen of Trisomy 18. It is no wonder I was so upset. All had ended up so far so good and we recieved a clear FISH and amnio. Glad I had the amnio done as I could not have waited

 

peet - May 15

Hi everyone, I had my ultrasound and the cysts were (very probably) gone, it was hard to get a clear picture, they said. The only other thing they saw was a dilated renal pelvis in one kidney, they were not worried and I also am carrying a boy, I'm very excited, good luck to everyone.

 

Megan - May 16

I'm 33 and a week ago went for my routine 19 week ultrasound only to find that our baby (our 3rd child and our 1st boy) had a cpc. They told us that it wasn't a big deal in and of itself, but to have it checked out with another ultrasound, which we had today. After a lengthy 20 week ultrasound they came back and told us that there is a cpc of .5 cm on the left side, but since my penta screen test came back fine it wasn't a problem. They then very quickly added that the baby's femur length was also off by a mm, but again, it is a soft marker and may not be a problem at all??? Of course, the risk now due to the cpc and femur length heighten my otherwise low risk for downs. (they ruled out Trisomy 18 with the ultrasound taken today) We were offered the amnio, but both my husband and I fear the horrible risk a__sociated with this test and since there are no "hard markers" we felt it was too much of a horrible risk to take! I will go back to have another ultrasound in 3 weeks, and of course, can then elect to have the amnio at that point. It seems several of you have taken the test and there is SUCH a wonderful piece of mind that comes from having the result and a "definite," which I am so lacking at this point. But, on the other hand, I don't think I could live with knowing that my son were fine and the pregnancy was jeopardized because of my choice? I wish they had never even found this 1mm difference in his femur today!! Has anyone else experienced multiple markers and been fine? How many of you advocate FOR the amnio? Any advice and comments from people who understand would be SO greatly appreciated at this point. Thank you and good luck and god bless to all of you!

 

Liz - May 16

Megan, After having been through this recently I would advocate amnio for the piece of mind. But that being said it is entirely dependent on you and if you can put this behind you not knowing and have a happy pregnancy. Most of the time these soft markers turn up with nothing and you worry for nothing. For me I needed to be sure that nothing was wrong it if something was wrong I wanted time to adjust and prepare. Have you talked to a genetic counsellor to look at the statistics? Do what is in your heart.

 

Megan - May 16

Liz, Thank you for responding! Yes, we met with a genetic counselor today as part of our whole "process" of ultrasounds and screenings. It seems that our son's femur is technically normal in length, in that it is in the standard deviation, it is just 1 mm short in comparison to all his other bone measurements. They offered the amnio (radiologist and genetic counselor), but seemed to strongly caution based on our markers being so weak. The genetic counselor even told us that if it were her she wouldn't do the test with our data . . . so??? My doctor, on the other hand, seemed to suggest another ultrasound in 3 weeks and an amnio at that point if there is anything aggregious. There are SO many varying view points and experiences with the test. We lived through this before with our now 18 month old daughter. They scared us with a sighting of a widening between her 2 left foot toes, but never replicated it again on the 19 week ultrasound and we just waiteds, so again ??? This time another marker was found and with the addition of the cpc? I feel in my heart that we made the right decision at this point and just pray to God that in 3 weeks all will be well and that relief will help! Thanks again!!!

 

Monika - May 16

I don't think you have enough markers to do an amnio. This sounds harsh but if your baby had d/s would you still carry to term? If no, then you wouldn't have much time left after the amnio to make your decision if you wait three weeks. Three weeks may be too long. I don't know- it doesn't sound like your chances are that high. It's probably not worth it.

 

Megan - May 16

Monika, Thanks also for your input. We'll see, I guess, in 3 weeks what we're looking at and if there's a need for the amnio, do it at that point. My doctor did inform me of the "time factor" in all of this - such a HORRIBLE thing to even have to think about - it just makes me sick to my stomach! I wish for your peace of mind at some point - hopefully, in 3 weeks. Thanks again and good luck to you!

 

Amy Munn - May 17

I'm pregnant with baby #4, and found out that the baby has cpc's also. Baby #3 had the same findings, and is perfectly fine!! My Dr. was wonderful at my exam and told me that both of her children also had cpc's, and they're simply considered a "variation of normal." She went on to say that many of today's medical journals are suggesting to disregard these cysts as even a soft marker.....that they so rarely mean anything. I can honestly say that I'm not nervous, probably because I've been through it once it before with a happy ending. When baby #3's ultrasound revealed the cysts, I paniced, having never heard of such a thing before. I opted for the amnio, and at that time, that was the only answer for me. I was able to relax after the results came back. This time, I honestly feel that everything is fine. My Dr.'s rea__surance meant the world to me, and hopefully some of you will find some piece of mind in it as well!!

 

As - May 17

It happened to me to.. Please try not to worry about it I did and It did disappear. Now Im 34 weeks pregnet and about to pop and Im so glad i didnt let it get me down. I think the doctor gave me a 1/10,000 chance dont stress its not worth it

 

heidi - May 17

hi ive just read your site and im over 18weeks preg and have been told that our first baby has a cyst on the right side size unknown and from what i have been told seems like my baby also has a cpc, i have a follow up u/s and triple test results scheduled for next mon but like all of you cant stop worrying and crying and stressing. hubbie and i dont want an amnio as wouldnt affect whether or not we'd keep baby as we would still do that regardless but just feel so uninformed scared and detached.any support or advice from people in the same circ_mstances would be really appreciated.

 

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