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hi ive just read your site and im over 18weeks preg and have been told that our first baby has a cyst on the right side size unknown and from what i have been told seems like my baby also has a cpc, i have a follow up u/s and triple test results scheduled for next mon but like all of you cant stop worrying and crying and stressing. hubbie and i dont want an amnio as wouldnt affect whether or not we'd keep baby as we would still do that regardless but just feel so uninformed scared and detached.any support or advice from people in the same circ_mstances would be really appreciated.

Heidi, we all know what you're going through to some degree. Had my second u/s last Friday at week 31 to confirm cyst was gone and it was. Baby is developing fine. Talked to my sister-in-law couple days ago and she told me five years ago her friends' Doc recommended aborting the pregnancy because a cyst was found without any other markers. She refused and her baby girl (now 5) is perfectly healthy. That was then, now it seems to me that having cyst(s) is no big deal as it's just part of development. Try to relax all you ladies (and hubbies) out there. If you have time, check out the sites suggested by John, especially the thesis one to find out more info. Peace to you all.

Heidi, I know how you feel and completely understand the detached, uninformed, overwhelmed feeling. As my previous message indicates, we opted yesterday at 20 weeks to not have an amnio after our cpc was detected for the 2nd time, and even when they told us that our son's femur is a mm short of the mean. I'll tell you that it was tough not to have the test, and I am still wondering, "did I make the right decision?" To know definitively would be great, but the risk for us is just so great. Just try to focus on getting through to the ultrasound and test results on Monday. As most messages on this board indicate, and our genetic counselor confirmed yesterday, the cyst isn't a big deal and will most likely resolve itself. Focus on the positive and keeping you and the baby healthy. I keep reminding myself every 5 minutes that if this is out of my hands anyway, why drive myself crazy??? I have to wait 3 weeks for a follow up ultrasound, and at that point possible amnio, and it seems like a long time. Good Luck and you'll be, as well as everyone else on the board, in my prayers.

Heidi, I too know exactly how you feel. I am not having the amnio as I indicated on an earlier posting because of the great confidence my doctors provided me by saying it's NOTHING to worry about it. So few women these days have an ultrasound that shows absolutely no "variances of normal." Technology can be scary!! But, when I experience the cpc's with my last child, I couldn't relax no matter what people told me, and did have the amnio. It made the rest of my pregnancy enjoyable and I was able to relax! Keep the faith, and really, rea__sure yourself that the cysts will dissolve. My doctor actually told me today that she has NEVER seen a patient whose cysts didn't dissolve!!

Hello everyone, It has been a while scince I wrote. I have been catching back up the last two days and it is a comfort to see all the responces and info from people in prettyy much the same boat! We had our second Ultrasound on the 13th and we go in tommorow afternoon to get the results. Of course I am still a little concerned this is our baby how could we not be. But with my trust in God and all the info I have read and come accross I deffinatley feel better than when they first told us about the cyst. My Dr. to said that rarley with no other markers are these cysts a problem and even showed me in his text book a whole section on them. So now I am just looking forward to getting the results on this last ultra sound! I know our baby is in Gods hands and each and every child is a true blessing from Him!! So I hope and pray it all turns out ok and the same for all you ladies to! We will have to keep each other all posted! May God Bless you all! Mem

My baby too, has just been diagnosed with this.....My baby has bilateral cysts on both sides of the brain. I am extremly frantic about it. Of all the info I've read, the vast majority of baby's diagnosed with this are born perfectly healthy. I'm trying to stay strong but it is very difficult. I go back this Friday for a more in depth ultrasound and a consult on the results. I also read about trisomy 18 and how these cysts are a__sociated with it. If all is physically well with the baby, especially the hands, feet, heart, space between the eye sockets, and neck thickness, then most likely it is called an isolated CPC, and nothing to worry about. Everyone wish me luck on Friday, and best of luck to all the other parents whose babies were diagnosed with CPCs.

Hello all, Well Praise the Good Lord!, we had our appt. yesterday to go over the results of the last Ultra sound and the Cyst has completly dissapered! Thankyou Jesus. I hope and pray all goes well for everyone else to. I so understand the worries and fears that go along with this, but I believe that through Jesus and prayer, our precious little one is just fine! I still plan on writing to everyone on this site to, I just hope I can be a help to some one else who has gone through or is going through this same type of thing! Believe me I know it is not easy to stay strong and not worry I sure didn't at times, but just lean on friends, family the Good Lord above and hopefully that will get your through all the waiting games! My best wishes go out to all! Thankyou Jesus, for my two blessings! God Bless you all, Mem

Memory, congratulations on your news.... Can I ask how many weeks are you now?? And how many were you when they found the CPC's?? I am 23 weeks, and at 22 weeks they found bilateral cysts on my baby. I go back tomorrow for a more in depth look at the cysts, and for any other markers. Hopefully all goes well... I've read that the cysts usually are still visible up to the 28th week. Please answer as soon as you get this please, I'm a emotional mess. thanks

Hi! We are expecting our second child, a boy, in October (already have a 2.5 year old girl). I am 37 (will be 38 at delivery) and I just had an ultrasound that found a choroid plexus cyst (one side only). However, I also had a CVS (chorionic villus sampling) test at 13 weeks (a chromosomal test that can be done earlier than amnio) so I do already know 100% that there are no chromosome problems. My ultrasound doctor told me that 1 to 2% of all babies have these cysts and that autoposies done on elderly people who have died also show that 1 to 2% of the general population has these same cysts. Has anyone else heard that? My doctor also told us not to worry. So I know rationally/logically that there is nothing to worry about because nothing is wrong, but emotionally, of course, I am worried.

Hello everyone! This site and your postings have given me a glimmer of hope! I'm currently 21 weeks pregnant with my seventh child (a boy). Never having this issue before (as far as I knew) the news was devistating. What I'm reading is that the cysts always go away (confirmed by a Dr. to me, too), but that there could still be a link to Trisomy 18. I'm 38 yrs. old and have had the long sono which discovered this CP cyst. As far as I know, there were no other markers for T-18 (our baby was in the 56% for weight and measuring almost a week further than I KNOW I was pregnant...(NFP and LMP!). My question is this: Is it true that we simply won't know anything until we see the little fella? My Dr. stated that he has delivered a child that had the CP cyst (that resolved itself) but no other markers and the child still had T-18 at birth. Have you heard of this? How do you tell/not tell something like "Either my son will be just fine or he will probably die before he is a year old (if he makes it to birth)?" I DO NOT wish to worry anyone here...your posts have been so encouraging! I just really want to sort all of this out. I will be praying for all of you and agree that a child is a gift from God and is a blessing, period. I'm just still trying to sort out the facts and figure out how to (or what to) tell our other children and friends and family. I'd hate to worry anyone else if this CP cyst is truly no big deal, especially in the case where everything seems o.k. on the ultrasound. My husband and I are not comfortable with the risks of an amnio, are there other tests we should consider? I haven't had a f/u visit with my Dr. since that amnio and have only the internet (not very encouraging re: T-18) and now this web site for info. I go back at the end of May and want to be prepared with questions. Thank you all, again, for your postings and prayers. You have mine! It is such a comfort to know that other Moms are praying, crying, and hoping through this, too! God bless!

Hello Crystal, Laurie and everyone else, I was 21wks along when they first found the Cyst and am now 28wks. So at the last ultra sound I was 27wks. I can understand the being an emmotional mess part thought! When we first found out I cried and cired but I think having our 18month old helped me through! He didn't like seeing Mommy cry, so I tried not to in front of him as much as possible. My Dr. told me that the cysts usually go away by 28-30wks and sure enough at my 27wk ultra sound the cyst was gone and the baby is just fine! What a relief. All I can say is try and keep your chin up and keep your faith in God and know that there are others out there who have been and are in the same situation! I just hope and pray that everything goes well for you all to! It is just so scarry to hear that there is even a slight chance that some thing may be wrong with our babies especially when they say some thing near the brain! I think that all we can do until we get the results is pray and try and think positive! And Laurie to answer your question I have not heard of anything like what your Dr. told you, not to dicredit your Dr. or anything like that! I was told that the Cysts are only some times a SOFT marker for those sort of things and with no other markers, tests or ultra sounds showing anything like Crystal was saying there is a number of people who have these and dont even know it! My Dr. told me that it was only like 5 years ago or a little more that ultra sounds could not even detect these cysts so it make you wonder how many people really do have them? Any how I feel so much better now knowing that the cyst did disspear and I know God has his hands on all babies!!!! Just try to think as positive as you all can I know it is hard! I hope and pray all goes well for you all! Keep us posted!!! God Bless, Mem

Hello everyone, I first wrote in about a month ago. At my 20 wk ultrsound I also found out that my baby had a CPC. At first I felt crushed and so so worried and I couldn't imagine how I would survive the 4 wk wait until my follow up ultrasound. My faith in God helped and my supportive husband. I am over joyed to be able to say that yesterday at my 25 wk ultrasound the cyst was gone. And I can't wait to hold my baby. Keep hoping for the best everyone.

Memory and Marta- That's great news! I can't wait until I can say the same thing. I have a friend who just had her second trimester ultrasound and her baby has a calcium spot on her heart (just like mine did). It seems like everyone that I know is having some type of marker showing up on ultrasound. I only know of one baby out of hundreds of posts that actually had downs

I am in the same boat except that I will be 38 when I deliver and my baby appears to also have a blockage in the esphagus. My specialist has told me that Trisomy 13 and 18 can most often be ruled out with ultrasound because of the severity of co-morbid birth defects but Trisomy 21 (Down Syndrome) is missed 60% of the time in ultrasound because the defects can be less severe. I haven't heard much here in regards to Down Syndrome, has anyone heard this as a concern related to the CPC?

I have heard that the CPCs do correlate with D/S- but I don't know how strong the correlation is. It was an issue for us because we had additional down syndrome markers to accompany the cysts.

if T21 is missed 60% of the time what are the percentages of missing T21 along with bloodwork...not amnio.